MToennis
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- HI!I know I havent been on in awhile. My spouse is battling cancer and I am in the trenches with him. I have been doing well for the most part but due to some increased pain, mouth sores and rashes, the Dr wants me to go back on Plaquenil. I saw my...
- I wrote quite a long post earlier today, but it would not post. I have had this happen before and it really pisses me off!Anyway, here is a short one. Sorry I have been away for so long. Some of you have sent requests to friend me on this site, but,...
- I had another major computer issue and had to have some repairs, then, I found I could not get on the site. I have finally figured out how to get back on. I had to change my password repeatedly. Sometimes I just feel so old, like I would not have...
- Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a...
- Well, my hair is again falling out. I had some success in keeping it while on Plaquenil and Medrol. I have been off of them for awhile, but on tons of vitamins up until a few months ago when I developed the poikiloderma and they had me go off all my...
- I just get back from the ENT Dr. I cannot get rid of this cough which they determined is caused by allergies and reflux. Well, the allergies are better, but my vocal cords are still inflammed. I am a singer, and that is a problem. I was supposed to...
- Yesterday, I got really hot. The temp was in the upper 80s. I was inside with no air. The humidity was high also. There was cloud cover, but I was inside all day. No sun, I just got hot. So today, I have hives just like when I get sun. My chest is...
- OK. So I had to go off my blood pressure med and cholesterol med because of the drug induced Lupus. (See my previous post) So yesterday and today, I had a headache, could not think, and my eyes would not focus. Same today. My blood pressure was...
- I have not been able to post lately as my life is a mess right now. My husband has prostate cancer and had surgery in November. The Dr had great hopes for a cure with surgery and assured him that he would have bladder control with in 6 months. Well,...
- Mary Ann
- What the heck is going on with this site again? It took me 3 days to figure out how to get on here. Stupid.Mary Ann
- Just so you dont think we are ignoring you, I cannot post a reply to your post. I wrote a very profound letter (LOL) today to you and finally lost it after trying to get it to post for several hours. I tried again and it again went away! I have had...
- I saw my family dr about 6 months ago. At that time, I had been off of steroids for a few months and was feeling decent, for the most part. Some pain and fatigue, but for some reason, I felt like something was changing. I asked him about thyroid...
- I got off all steroids after 10 years on them. Now, the pain is back and gradually getting worse. I always had some even while on the steroids. The steroids and the Plaquenil combination worked the best along with Celebrex, but I cant take Celebrex...
- Today I went to the rheumy for my check up. He was pleased but took blood to see if he could figure out why I had a 3 day flare which came and went! He thinks I am in remission and that the nodules on my finger joints are osteoarthritis and not...