Don't let that person get away with saying you did something wrong. Challenge it and get your records corrected. If they record in there that the patient went off meds....it could be bad for you later. My parents had a Dr say they refused care and were combative. It's been a mess.

On the blood pressure issue, I believe I had similar issues with Hydralizine. Not good. I finally got my bp controlled with just Spironolactone and no other bp meds. Turned out my bp was caused by over production of aldosterone and Spironolactone blocks it.

Thanks for the reply! I went to see the family dr and he asked me who told me to go off the BP med. I told him it was the dermatologist who said she would send him an email about it! I then asked if he got an e mail from her and if he had read it. He did not reply. He said I should be monitoring my BP and I told him I did and that was how I knew it was high. He then said that a little rash should not be a reason to stop the meds. I then told him that the rash had started to hurt and felt like my skin was tearing and the dermatologist was concerned it might be very serious. The blood work showed it was not as bad as it initially showed. It can cause severe vasculitis with loss of fingers, toes, and cause heart attacks. She now thinks it is just the skin involved. No reply from him again.
I have always liked him but I dont think he get it. I am disappointed in the response I got from all 5 of the drs I went to, except from the dermatologist. I felt like I was back with all the signs of MCTD and the Drs who thought I was a hypochondriac! BTW, it was a dermatologist who diagnosed my MCTD!!!
So frustrating! I think things are under control now, for the most part. But the trust I had in these drs has sure been shaken!
Mary Ann

Hi Mary Ann,

You replied to my first post here. Thank you!

I'm very irritated with your doctors because they seem to be forgetting to take care of their patient...you! They're not communicating with each other or with you. You're dealing with some very frightening symptoms and possibilities, doing everything you're supposed to do, and YOU got chastised?

Good for you for speaking up for yourself!! That one seems to change the subject on you when he thinks you're questioning him. He minimizes your symptoms, "a little rash". That's condescending! You deserve to be respected.

I once had a doctor be very very rude to me (unrelated to this diagnosis) and the next appointment I told him I needed that to change or I didn't think we would be able to work together further. Even though he had plenty of people in his waiting room and didn't need me, he apologized.

I was a bit surprised actually but I did mean it. I had already started looking for another doctor. We never had another problem after that.

You need and deserve to trust your doctors. I'm so sorry they behaved so badly.

Sharon

Thank you Newby and Sharon!
Mary Ann