I have not been able to post lately as my life is a mess right now. My husband has prostate cancer and had surgery in November. The Dr had great hopes for a cure with surgery and assured him that he would have bladder control with in 6 months. Well, the tumor was small, not really agressive but was up against the rectum and so he could not get it all. He was to have his catheter out in a week, it was 5 weeks. The catheter perforated the bladder causing much bleeding and pain. It has been 5 months now. He still has no continence in spite of pelvic floor PT and now he has to have 40 radiation treatments. He is very depressed and doesnt want to do anything or let me out of his sight. He has leaked urine all over the house and I am constantly cleaning. He tries and it is getting better but doesnt always change his pads soon enough. I am doing everything I am able but I am tired.
My daughter will have her court appearance for disability in June and I have been having to gather records. Of course that is never done with one call or visit and there is a charge.
We spent $45,000 last year out of pocket for our medical last year. I am glad we have the money but this is nuts! My husband went on Medicare at the beginning of April, I go on in May. Meanwhile, I had to get a new policy for 1 month. So I will be on 3 different policies this year. My daughter had to go on Obamacare with a high deductable but has to have it due to her heart, eyes and Cerebral palsy. She works part time and cannot pay all of her premium each month with what she makes much less her co pay or any other expenses. She works at a part time job for the disabled. I am afraid she will not get disablity and so will not be able to get Medicare or Medicaid.
I have this rash I cannot get rid of. I went to the family Dr who thought I had a drug rash. He sent me to an allergist who thought it was autoimmune and would not do drug allergy testing. I went to the rheumy who said it was not autoimmune and told me to go to the dermatologist. He did blood test for autoimmune stuff and inflammation which were all normal so he said I was in remission. I saw the PA at the Dermatologist office who was not impressed but did a random punch biopsy which showed 1- Drug rash, or 2- poikiloderm. She thought it was a drug rash and sent me back to the family Dr who said I should not worry about "a little itch"! Bull shit! In the meantime, I had stopped taking all meds that I thought would not kill me and got a steroid shot in my shoulder for a frozen shoulder. And did PT for it. I got pretty good results and the rash went away. It came back. I went to the Dermatologist for my annual rosacea complaint. She saw the rash and said it was definitly autimmune and not a drug rash. She said it was Livedo Reticlarsis or Poikiloderma. She said it could me just the skin or cause a vasculitis which was very serious. She did another punch biopsy and said come back in 2 weeks. I lost my keys at the office and we looked for 30 min before I found them between some cushions in the waiting room. I had to call a friend to take m daughter to work in the meantime. I came home and the power company had the power cut off while fixing a line in my back yard. I need a root canal and will have that tomorrow. At least that will get rid of the pain in my tooth, but more money.
I stay pretty upbeat but I am overwhelmed. This is a good place for me to let go. Even if nobody reads this, I have gotten this off my chest and that does help. Hope all of you are doing better than this train wreck.
Hello again!I posted a while ago and wanted to update everyone on my throat, it is the most bothersome sysmptom for me. I went to an ear nose and throat specialist in July, she put a tube down my throat and said all good up to the vocal cords go see a gastroenterologist. I went to see her today, she will do the same but down to my stomach. She says it sounds more like Sjogrens than like...
Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a meal, I went to the rheumy who was concerned that my BP was too low. It was 103/70. You see, my meds had finally kicked it! Anyway, he took my hair...