strizzlow20
Status:
Mood:
Ok
Offline
- Hello everyone. I haven't been here in a couple of years. I have symptoms consistent with MS, but no diagnosis. I'm starting to not think it is because I don't have one sided symptoms really anymore and we have 0 diagnostic evidence of MS. My...
- So im a mystery case, with a long history of a low but positive mg achr binding test (.35) but other symptoms that don't fit mg. Yesterday at my two month follow up my neuro said my b12 was low but not low enough to need treatment. It was 526. A few...
- Does anyone have an issue with this at all? I have this issue and my doctor has picked this up. He said MG can preset like this at times. Just some thoughts :) .
- So i dont have an official dx of ms but my neurologist suspects i have it. All testing has been negative with the exception of some mild cerebellar atrophy. we have not discovered lesions on any of yhe mris so im leaning away from ms, but who knows....
- Amazing and inspiring movie. I watched this movie 13 years ago in my biology class. I didnt know ALD destroyed myelin. It makes me wonder if there are resources.to truly rebuild myelin, even in progressive conditions which dont have as many...
- I have troubles with my eyes. Started 10 years ago with Phosphenes (Blue Entophic Phenomenon) and Palinopsia (after images). Now I have a different type of distortion. I think it's a stability/jittery issue with my eyes. Does anyone have this...
- So I understand that MG has many different faces and that not all tests are slam dunk. I may be mistaken, but I believe I have seen other members here that have had IVIG or Plasmaphersis and are still going through the DX stages. I'm very frustrated...
- Merry Christmas! Ive had numerous posts on DS trying to find someone with similar vision problems. Anyways, i thought i would share.this because it mentions MS and i watched a youtube video that showed examples of the visual disorder and its close...
- Okay everyone. I was going to follow up on the thread I started but I figured this deserved it's own thread. So I had a follow up with my neuro and I brought about my twitching and sensory concerns and my MG. Now I may have more than MG going on so...
- Hi friends! I am having progressive distal weakness in conjunction with my bulbar symptoms. The bulbar symptoms fluctuate more than my distal weakness, i just want to know if anyone has this issue? I feel like my ankle, and calves are weak along...
- http://www.sciencecodex.com/new_cause_found_for_muscleweakening_disease_myasthenia_gravis-122755I copied this from another forum so I apologize in advance if this has already been submitted or provided to everyone.
- Has anyone had a negative SFEMG? I've had two and had a neuro tell me I don't have MG if I failed this. She also said I should have a Tensilon test to see if it alleviates symptoms for a proper DX. I am positive for antibodies and they're high and...
- Hello Everyone. I'm not going to write everything i have been through in this posting because I'm not sure if I should be in this forum but I would like to pick some people's brains. Since April I've had some neurological issues that cannot be...
- So, i have some vision issues that cannot be 100% connected to MG from my previous posts, so this is actually something different. My eyeball, the muscle or a muscle of the bottom of my eyes has been twitching. I can actually feel the muscle moving...
- Does anyone suffer from this, such as visual snow or a really obvious Blue Entophic Phenomenon? Any vertigo symptoms? Just figured I would ask :) .