Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
So im a mystery case, with a long history of a low but positive mg achr binding test (.35) but other symptoms that don't fit mg. Yesterday at my two month follow up my neuro said my b12 was low but not low enough to need treatment. It was 526. A few months ago it was 430. Anyways, was looking at my old test results to look at previous B12 levels and i also saw i have luke a 230 range for testosterone and 30 for cortisol. Im very low on testosterone for 28 years old i think and 1 point below the too high range for ccortisol. Am i stretching by seeing someone else about this stuff? Im having worse slurred speech, but not very noticeable to others at times, forgetfulness and difficulty concentrating. Plus extreme fatigue and muscle weakness. All these ranges that differ from each lab make it difficult to decide what's right and i see online that even normal.ranges are too low and cause problems. My doc thinks MS, but im thinking ataxia by something different but they have to wait for a change or until i get worse. Other physicians are iff and on about mg and my neuro said its because they dont know. In my heart, i don't think its ms at all. Any advice is cool or experiences :)
I too believe that the abnormal hormone and vitamin levels can play with your condition. No matter what your diagnosis (or no diagnosis at all) hormone and vitamin levels can mess up every part of your functioning. Even low "normal" results can cause things like restless leg syndrome or numbness/tingling. You can't discount the legitimacy of those results. The more results that are borderline or abnormal the more symptoms you are likely to experience.
Unfortunately, looking for someone to help sort those results out and actually treating you for any deficiencies can be tricky. My cortisol levels have been out of whack for several years and so has my Human Growth Hormone levels and my vitamin D. I've found that most endocrinologists won't treat abnormal HGH levels because insurance companies don't typically pay for such treatments (Mine does but they still won't treat it for fear that they will reject the claims despite prior authorization for such.) You will find doctors out there that will treat such things but they are private pay and only accept cash which the average person doesn't have enough of.
I would talk to your PCP and ask them who they would recommend you see to iron out the hormone levels and get you normalized. You might find yourself feeling more like your "normal" self. Meaning that maybe you will feel more stable or like your issues not as noticeable... well, I hope you know what I'm trying to say.
Please keep us posted though. I'd love to read some updates from you. Hugs!
Angie
For someone your age, you need to follow through and get an answer on this like you are already doing.
--Kerry