Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Phosphenes, Palinopsia, Eye Muscle Weakness

strizzlow20
strizzlow20
I have troubles with my eyes. Started 10 years ago with Phosphenes (Blue Entophic Phenomenon) and Palinopsia (after images). Now I have a different type of distortion. I think it's a stability/jittery issue with my eyes. Does anyone have this problem? I have floaters, but I have a more noticeable black dot in my right eye. Evoked Potentials were normal except for slowing on the right side, but not considered abnormal. I know about optic neuritis but I don't have this. Anyone else have issues with their eyes? I have clean LP, MRIs, and EPs at this time. Only Myathenia Gravis which does not cause these issues, with the exception of stability. Plus, it would fluctuate with MG, which these do not.
strizzlow20
strizzlow20
I'm seeing my 3rd neurologist in a couple of weeks that specializes in MS because the neuro ear nose and throat doc wants me to. My current neuro says I may have an atypical case but no diagnotic evidence yet. He isn't ruling this out because of my symptoms of constant, very subtle oscillopsia. Insane, I know, but I figured another opinion at this point doesn't hurt. I also suffer from tingling and numbness in my arms, legs, and feet. Also facial tingling and the scalp as well. I've been dealing with that for years, but has gotten worse since I woke up one day and noticed the major distortion. It seemed like an attack overnight.
deleted_user
deleted_user
IM NEW TO ALL OF THIS BUT I DO HAVE PROBLEMS WITH MY EYES. THATS WHY I HAVE TO TYPE IN CAPS JUST SO I CAN SEE WHAT IM SAYING. WITH ALL THE DIFFERENT THINGS YOU SAID YOU ARE DEALING WITH, YOU KNOW, ALL OF THOSE 18 LETTER WORDS...LOL I DONT EVEN KNOW WHAT ANY OF THAT IS. ALL I KNOW IS MY SIGHT IS GETTING WORSE, ITS BAD WHEN SOMETHING OR SOMEONE IS STANDING IN FRONT OF LIGHT. I CANT SEE THEIR FACE AT ALL. THEY ARE JUST A FORM TO ME. NOW IM HAVING A HARD TIME SEEING THE TV OR READING. I HAVE FLOATERS BUT I ALSO HAVE THIS HAZE THAT IM TRYING TO LOOK THRU. ITS LIKE ITS ALWAYS FOGGY AND IM TRYING TO DRIVE OR SEE THRU IT. AS FAR AS THE NUMBNESS.....GOOD GRIEF, IM THERE WITH YA. MY LEGS, FEET, ARMS, HANDS AND FACE ARE ALWAYS NUMB AND FEEL LIKE THOUSANDS OF NEEDLES ARE STICKING ME ALL OVER AT THE SAME TIME AND THE BURNING IS HORRIBLE. SORRY IM NO HELP FOR YOU BUT LIKE I SAID, IM NEW TO ALL OF THIS AND I JUST JOINED TO TRY AND LEARN ABOUT THIS AND TO TRY AND SUPPORT OTHERS. IM SO SORRY YOUR GOING THRU ALL OF THIS. THIS IS A HORRIBLE DISEASE. PLEASE LET ME KNOW WHAT YOUR NEURO SAYS CAUSE I DONT HAVE ONE. IM NOT SEEING ANYONE ABOUT MY MS.
TAKE CARE AND HOPE THAT THINGS GET BETTER FOR YOU.
mmthlvr
mmthlvr
Yes, I have problems with my eyes. Before I was diag weird things started happening. When I was reading my eyes would suddenly dart off to the left & sometimes they would vibrate. I have double vision from time to time & I don't drive at night. The weirdest thing about driving at night are what I call shadow buddies. I always see shadows off to the sides & they look like they are going to run out in front of me.
And of course optic neuritis & eye pain.

Just to let you know, it took me 5 different neurologists/MS specialists before I got my diag. I wish you luck & keep us posted.
Hugs
Tammy