Men has been twitching for several weeks now.

Thank you Elinora!

I used to get it periodically way before I became ill.

In the past I have occasionally had eye twitching when under increased stress or lack of sleep. Fatigue is said to sometimes be a culprit as can be too much caffiene or alcohol. It sounds like you have been fatigued so perhaps that is the reason. I have seen other articles talking about levels of potassium, magnesium and calcium.

Of interest is that a type of eye twitching that is induced by a series of maneuvers has been used to point to MG by ophthalmologists. I had not heard of this before am enclosing a link.
I would think with eye muscle weakness twitching might happen sooner then later in any given circumstance.

http://www.ncbi.nlm.nih.gov/pubmed/21654336

My own personal experience was that is was mainly annoying....royally so....but usually stopped within three weeks or so. Wish I could say I knew of some magic drops for it but I don't! Marie

My MG is general however I used to have a fairly frequent issue with eye twitching. At the time my neuro had me back off my mestinon and prednisone, which stopped my twitching.

Not sure if you are on any of those meds. You should let you doctor beware of your problems and also consider the small possibility of a medication side effect.

I have also been having problems with feeling very fatigued as soon as I wake up. Many MG patients are diagnosed with sleep apnea. I use a PiPAP and still have problems in the morning feeling very fatigued.

I participated in a quality of sleep study done by PatientsLikeMe. They just release the results of the study, which showed a much higher frequency of sleep problems for people with chronic illnesses. You can find the results at;
http://patientslikeme_forum.s3.amazonaws.com/PatientsLikeMe_Sleep_Survey_Infographic.pdf

I have started tracking my quality of sleep using my fitbit. Many other similar devices also track sleep. The data shows problems falling asleep and waking up an average of 8 to 12 times a night. It rates my quality of sleep at 75%.

I will use the above information to discuss my concerns with my neuro and pulmonary doctors in a couple of weeks. It may be time for me to have a repeat sleep study.

I hope this may help in some way and you can get some answers very soon.

Wishing you the very best.

Bruce

Well, I don't know. I got random muscle twitches, especially my larger muscles like thighs, for years before MG symptoms really became apparent. My left eye used to twitch like mad occasionally, it bugged me and then went away. A friend's mom had an eye twitch that ended up being a symptom of cancer, so I eventually mentioned it to some doctor and was told it was nothing. BTW, my left eye that used to twitch is the one that likes to wink sink and close.

You know what? Since starting mestinon all my muscle twitches went away. I don't even seem to get muscle twitches from mestinon, but will on rare occasion get a few when it starts to disappear from my system and my symptoms come back. I take more mestinon, my symptoms go away and my twitches stop, so it's not a result of too much mestinon.

I too get the eye twitching. I once had it go on continuously for 1 month! My neurologist said it wasn't MG-related but instead a fatigue and eye-strain issue.

Where did my response go? It was a good one too. Damn! I guess I have to do it all over again. :-(

Okay, so what I said was....
I have had eye twitching for many, many years. Long before I was ever consistently symptomatic or diagnosed. Sometimes it goes on for 4 or 5 months at a time. One of the doctors that I used to work for on the mainland always told me that it was due to lack of sleep. Even though I was sleeping all the time.

Working in a medical clinic is hard when you are winking at everyone. There is nothing more embarrassing than having a patient family member wink back at you when you leave the exam room. I didn't know if he was making fun of me or making a pass. lol

This is one of the most annoying things for me too because I can't get my eyes focused when it's happening. Any blurring or double vision is compounded by the twitching. If someone has a way to minimize this, I'm listening. Sometimes I just cover it with a patch to rest it which does seem to alleviate it to some degree. So I do that when I'm at home but I just don't see myself going to work with a pirate patch so I just struggle through it there. I'm anxious to hear what others have to say on this topic. Hugs!

I get eye twitching (usually in the morning) but occasionally when I shower in the evening. It is followed almost all the time by eyes drooping. The drooping eyes usually lasts minutes so I don't worry with any so it. I have enough other MG symptoms to worry with.
The increased fatigue I would worry with and let your neuro know. There may be a change in you care in the offing.

My left eye lid started twitching after a month being on 180 mg of mestinon, my Neurologist had me lower it to 120 mg and the twitching stopped. I'm not sure if your on mestinon or not but in the side affects that comes with my meds twitching is mentioned.
Hope you get some relief, twitching can get annoying.

When we were kids and our eyes started twitching, my mom would give us Lugol's solution. http://en.wikipedia.org/wiki/Lugol%27s_iodine said it was a sign of iodine deficiency. Seemed to help.