sewsewsonia

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New to this group

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Hi just found out I have emphysema. Reading thru your posts I realize I have a lot to learn. I was a smoker, have now quit. Have been offered inhalers by dr but do not feel that I need them. Do not feel breathless. I have always practised yoga...
Llmd toronto

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I have tested positive Igenix. Need to find llmd hopefully Toronto area. Currently wating for Cowden protocol to arrive. Need help, such pain, breathing difficulties and speech like stutters. Any help in finding llmd so much appreciated.. ...
Thank you

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I know I have not posted for a while... I have tested positive for Lyme disease. So have been misdiagnosed with pm and wrongly treated with prednisone... Seems that there is a whole new journey (and learning experience) ahead of me.. I have...
new to lyme group

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Started with high blood pressure in Oct.2011 followed by neck/back ache in Nov.Dec.2011. I was checked out for a stroke in May 2012 which turned out to be Optical Migraine. In July 2012 I was unable to walk very far. October 2012 unable to lift a...
More Tests

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Took results from my visit to emergency on Thursday to family doctor today. I am now scheduled for a Cardiac Perfusion scan and an Echocardiogram. All this because my ecg was abnormal at emerg. My doctor is also calingl rheumy tomorrow morning...
Prednisone taper

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Have not been too active on the group for a couple of weeks as have been experiencing various probs. Now down to 45 mgs and drop again on sunday to 40. Started with breathing probs, then my body went exceptionally weak with chest pain/back pain...
visit with rheumy - update...

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well after 38 days on prednisone my ck is within normal range and i must admit to feeling better, not perfect, just better... the rheumy wants to start me on the taper already. 5 mgs every week. (I'm on 60 mg) So tomorrow morning I will drop...
Just another day with pred

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Day 29 on 60 mg pred. I am not complaining, I am so very thankful to finally be on meds for the pm. Just wanted to share (and vent) and let you know how I am feeling.I am suffering the sinuses too, feel like i am talking thru my ears. I...
muscle biopsy/mri's

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Hi again my friends. My family doctor called me in today to go over some of my results as the rheumy had not called me. Apparently the muscle biopsy did not show myositis, and the mri's of the two muscles groups were good. She did not have a...
Catching up

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I have not been able to login to the website. It allows me to read all of your posts, but not reply. Finally reported it yesterday. Today, I am able lo login. Does anyone else experience this difficulty?Just wanted to say that my thoughts and...
Next stage of the journey

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I had my muscle biopsy on friday 22nd. Today saw my rheumatologist, he has put me on 60 mgs of prednizone per day. I start tomorrow. Muscle biopsy results not in yet, but he said because of the severity of the disease i have to start on 60...
Update

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Such a busy last week. Met with general medicine, they are arranging ct scan to check for underlying cancer. Finally saw neurologist and had emg which definitely showed myositis. Friday back to rheumy who confirmed myositis and has arranged to...
new to group

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Hi my name is sonia. I have finally be seen by a rheumatologist who is reporting suspected polymyositis. He has referred me to a neurologist but i do not have appt till mar.20. I am on the cancellation list. 7 months ago I noticed weight loss...

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