COPD & Emphysema Support Group
COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join...
If I were you, I would at least keep a rescue albuterol inhaler on hand. With this disease your breathing can get much worse fairly quicky. If you don't need it, great. But if you suddenly do, you will be very glad you have it.
Hugs.
Why don.t you talk to your doctor and tell him you do not feel you need the inhalers at this time.
However I agree with the other member that a rescue inhaler is necessary. Have an honest discussion with him and also bring up the weight loss. That is something connected with emphysema, but usually it is over time. You need to see your doctor about that for sure.
That is to much to lose all at once. (IMHP) We have to keep exercising to prevent muscle wasting because that is what helps us to keep breathing , Please let this group know how it all worked out.
BJ
I agree with the suggestion to have a rescue inhaler available. Sometimes the breathlessness can hit when you least expect it so it's good to reduce the anxiety, panic; and recognize that this will occur so best be prepared. In fact my first rescue inhaler lasted for over a year and I had to toss it because it passed the expiration date - not true these days.
There is a lot to learn from your Primary Care Phys., Pulmonary Phys., Pulmonary rehab, this forum. The best this forum provides is our experiences - can't be beat!
Don't hesitate to ask away. Take care...
I am sorry that you have this disease, but glad you are doing so well and don't feel breathless.
I was dx'd in 2010 with moderate emphysema & because the PFT showed that my #'s didn't improve with the albuterol nebulizer treatment they do during the test (rescue inhaler) I chose not to do inhalers also.
However, I didn't know that there were other types of inhalers that are done once a day "maintenance inhalers"... 2 years later, after a bad exacerbation, I was given a 'non-steroid' inhaler that really helped me.
Unlike others that posted, rescue inhalers still don't do much of anything for me. It is something to talk with your Dr about, as BJ suggested.
Quiting smoking was the best thing I think I did to help me breath, so congratulations on your quitting.
I also have a hard time keeping weight on. I try to eat healthy, but a few extra calories with things like ice cream are my luxury now.
COPD does have a tendency to lose muscle tone, not only thru lack of wanting to exercise, but also, muscle wasting is attributed to it. Those of us with COPD know the need of getting extra protien in our diets to help keep our muscles strong.
I see you also have problems with pain. Some of us have problems with pain and that sure does kill an appetite & urge to exercise.
Many people have "Pulmonary Rehab" that have it available in their area. (I don't unfortunately). From my understanding Pulmonary Rehab is really great to learn about COPD food, treatments & exercise. I wish i had it in my area & recommend asking your Dr if it may be an option for you.
sorry for the long post, but i have a tendency to babble on....welcome again :)
Come eat with me and you will gain weight : )
Seriously hope you can reverse that.
I have I think 2 pound, maybe 5, weights I play with watching TV.
Just adding in 08 i was overseas on a Surfing holiday....had a few SOB episodes but put that down to lack of fitness...Today it is as above...
Take care and all the best
Peter
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