Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
I have not been able to login to the website. It allows me to read all of your posts, but not reply. Finally reported it yesterday. Today, I am able lo login. Does anyone else experience this difficulty?
Just wanted to say that my thoughts and prayers are with all of you.
Day 10 of 60 mg prednisone. Well the first 3 days were euphoric. Whether that was because i finally got the pred, or because of the effect of the pred, i don't know. Had me thinking, this is not going to be that bad. Unfortunately that wonderful feeling did not last.
First the insomnia, I did try the nighttime benedryl and that was working fine until the bp soared. Doc had to increase my meds and put me on a diuretic, Diuretic and benedryl not a good mix....... So back to the sleepless nights. Even on the diuretic am finding legs/ankles very swollen. I get very agitated very easily and fly off the handle for the least little thing, (and i have always been so even tempered). The hub says, its ok its just the meds, it will get better.
The good news is that i have already gained two pounds, can't stop eating. 103.8 lbs and counting...... (I want those 36 c's back) Lots of healthy food, quinoa salad every lunchtime (has become a staple). The best news is that the pain is subsiding, very slowly, Guessed in my mistaken dreams it would be instant...... and I am able to move. I am no longer the veritable couch potatoe, but still very weak. Very frustrating cause i always want to do more than i should. I have printed and continuously read your wonderful, wise posts, from my previous postings - pace myself and have oodles of patience.
To date no real complaints - I am feeling better.
Next week 2 MRI's, bloodtests and then the CT Scan. Not due to see rheumy till May 2nd.
Gee friends, I'm feeling hungry. Time for a big bowl of rice pud......
Hope its ok to post on a happy note.... Be well, love and peace to all.
Sonia
Just wanted to say that my thoughts and prayers are with all of you.
Day 10 of 60 mg prednisone. Well the first 3 days were euphoric. Whether that was because i finally got the pred, or because of the effect of the pred, i don't know. Had me thinking, this is not going to be that bad. Unfortunately that wonderful feeling did not last.
First the insomnia, I did try the nighttime benedryl and that was working fine until the bp soared. Doc had to increase my meds and put me on a diuretic, Diuretic and benedryl not a good mix....... So back to the sleepless nights. Even on the diuretic am finding legs/ankles very swollen. I get very agitated very easily and fly off the handle for the least little thing, (and i have always been so even tempered). The hub says, its ok its just the meds, it will get better.
The good news is that i have already gained two pounds, can't stop eating. 103.8 lbs and counting...... (I want those 36 c's back) Lots of healthy food, quinoa salad every lunchtime (has become a staple). The best news is that the pain is subsiding, very slowly, Guessed in my mistaken dreams it would be instant...... and I am able to move. I am no longer the veritable couch potatoe, but still very weak. Very frustrating cause i always want to do more than i should. I have printed and continuously read your wonderful, wise posts, from my previous postings - pace myself and have oodles of patience.
To date no real complaints - I am feeling better.
Next week 2 MRI's, bloodtests and then the CT Scan. Not due to see rheumy till May 2nd.
Gee friends, I'm feeling hungry. Time for a big bowl of rice pud......
Hope its ok to post on a happy note.... Be well, love and peace to all.
Sonia
When I was on the high doses of Prednisone (60mg, 50, 40), I told my husband I was not myself and not to let me make any important decisions. I also avoided large gatherings because I wasn't sure I could control what I said. I stopped driving because I thought that if I ever had an accident, the other people involved would probably be able to build a good case against me. I didn't gain any weight until I was below 30mg.
Regarding sleeping at the high doses, I was happy if I slept for 3 hours. I didn't try any sleep aids because I didn't want anything to interfere with Prednisone doing it's job.
It's great that you are feeling better!
Wishing you strength and peace.
For sleeping I tried not to worry. If I woke up in the middle of the night I got up and read. I also use lavender essential oil on my pillow to help with sleep. I also take a magnesium citrate supplement called CALM and it helps me get to sleep.
Hopefully you can have naps during the day. I know I slept alot last summer and still get tired. Do rest and take care of yourself! Sending prayers and Reiki to you. Roxanna
And again caution against dooing too much when you feel so able. The body is not all caught up with the mind just yet...
All the best to you, Shawna