So glad to hear you are feeling better Sonia. That is awesome! I think your taper makes sense at that higher dose. When you get lower, it will probably slow down more. You can see how you feel and go from there. Moving your body is an excellent idea. I'm so glad you found someone to help you. I think it is a great idea to work with someone as the exercises do need to be tailored to you and how you are feeling. Remember to take it easy but not too easy. Enough to feel like you exercised but not enough to put you in bed for a few days.

Keep feeling good and enjoy it!

Sonia, so glad for your progress, yes that taper is fine at that dose... You may not feel it at all for a bit, maybe at 40 or 30 or 20, but if you dont' feel anyting, count yourself as thankful. I dont react till lower than 15 mg... Then it is harder but still manageable.

If the exercise is too much for you then scale back some more. In th e beginning for me i could not do 10 of anything. 4 or 6 was a better start for me,a nd i might do it twice in one day and then skip a day or two... Getting overly fatigued is not good for you, and i would highly recommend a PT with strong neuro experience. Ask the chiropractor if he has done this with neuro patients before, the fatigue we get is not the same as most folks and this is not a power thru it kind of disease... slow and steady wins this race.
My best to you. Keep listening to your body and make some notes of how you feel.
totally enjoy that oxygen and if it helps askt he chiro to order you some.
shawna

Hi Sonia. Told you so !!! Knew you would get to here and in six months you will feel so much better. I am going to support Lexis and Shawna on the exercise thing. It's slow and easy, walking is good. I am not sure about the machine that shakes the muscles and if its suitable for us. I had dire warnings from my Rheumatologist at diagnosis about not pushing it. The taper you are doing at this stage sounds normal. They start to slow it down when you hit the 20mgs. Has the Rheumatologist talked to you about introducing any steriod sparing drug. It's wonderful to have good news of you, lovely you feel better and great your sense of humour is back. Onwards !!!!! Autumm

This is great news, Sonia, and I'm so glad that you are moving in the right direction. As the others have mentioned, be careful with the exercise and don't overdo it. Your IV and oxygen sound wonderful. I hope they really give you a boost in your health. BTW, your sense of humor is great. I'm glad you have it back also. Best wishes for continued improvements.

Oh my dear friends.... i begin to wonder who needs a rheumy when I have such wonderful advice from you all. Yess I will take it very easy with the exercise... I so look forward to (6 mths from now autumm) you have given me a goal.... maybe i can get back to my gym, yoga and walking with my beautiful airedale dog. she has not left my side all this time. almost like she senses something is terribly wrong. i have so much to make up to her for. I would luv to go back to britain & visit my family or take the alaskan cruise we had planned for this year. ((dare i think - maybe next year) or am i dreaming..... guess only time will tell.
I do not think the vibration is hard on the bod. i have excellent advice and only do 10 mins a time. (after all at 101 lbs cannot afford to lose weight). Please tell me when does the prednisone weight GAIN start showing. I cannot walk around the stores, have nothing to wear - nothing fits..... so....... i ordered off the shopping channel..... XS and it is still too big.... ha ha....... i have placed them in the clothes closet until i grow into them.... (now that is my positive thought for today) they are so pretty so guess they will be worth waiting for.
Should have mentioned that my naturapath also told me that prednisone is depleting my calcium/magnesium/folic acid,/potassium/selenium/zinc iron/dhea/and the strontium i take for my bones. oh and also melatonin.... unbelievable.... huh.... so now i am on extra of everything. i had started to notice
severe cramping in my fingers and thats when he came up with all this. i am a great believer in natural medicine... i am so lucky to have so many people here helping me with all of this. Can't wait for friday and my iv/oxygen - like going to the spa.... gee i must be desperate.

Not sure what the rheumy has in store for me next round. I go beginning of July and will update again then. He has not mentioned a sparring drug yet. Thats probably the next step.
As you say Autumm "onwards"
Thank you so much for you wonderful replies.
Love and peace.... sonia

Hi Sonia. I did not start any wight gain on the Pred until I was at 20mgs. The reason being I think is that we still feel too ill to eat. We really start to feel the improvement around tht doe, we now want to eat again and with the increased appetite from the Pred the pounds just pile on. I was putting on two pounds a day at one point. Having lost so much weight I was delighted to be approaching normal and so enjoyed stuffing in foods I would never have eaten before. I now pay the price but have only the last ten pounds to lose, its a nightmare, if I look at a cake it sits on my hips for a week. So do be careful. Do be careful also with the Folic acid intake, I believe too much of this vitamin and vitamin A is not good. Hope you enjoy your steady daily improvement. Keep in touch. Onwards !!!!!! Autumm

Sonia, it should read 'we really start to see improvement around the 20 mgs dose '