I've had Lymes disease and multiple coinfections for over 2 years now. Most people that have Lymes disease also have several coinfections like Babsiosis, Bartonella, erlichiosis, to name a few, it rarely is by itself. Most people also find llmds to treat them as you wouldn't use a general practitioner to treat a cardiac issue you would use a cardiologist same holds true for this suppressed pandemic. As you are probably well aware by now Lymes is a controversial disease in the medical field and otherwise and needs a doctor who 'gets it' to properly diagnose and treat it. You can find llmds by becoming a member of sites that will send a doctor a month via email to you once you are a member (it's free google search them). I don't remember the name of the site I used to find my llmd. This is done to protect the doctor treating Lymes patients. Or you can ask around on here. Each case is as differnt as a finger print and what might work for some might not work for others and vice versa. There are so many different ways to treat it: rife machines, antibiotics, herbal protocols, dietary changes (no sugar/gluten ect) ect ect ect. It's a journey that is akin to being strapped to a roller coaster (especially since these diseases cause emotional distress chemically already). Even if you think your ready to be in it for the long haul, that you'll be ok because you realize it's a journey, it still can throw a level headed person for a loop emotionally. Get a llmd that will treat you. Use one treatment at a time to see if it is working. Test for coinfections you can't treat Lymes without treating coinfections too in order to get better (repeatedly because they might show up one day and not the next based on how suppressed your immune system is). Change your diet ( no sugar, no processed foods, no gluten/inflammatory foods). It's been said that steroids and Lymes are a no no over and over again in sites I've seen so I'm guessing this is true I've not been on them so don't know personally. If there are support groups around you go to them (the average joe does not understand Lymes and making people 'get it' might suck up a lot of valuable energy). Speaking of energy, get organized to conserve energy so you can still exsist by metering it out for survival first and other things next (prioritize). People with Lymes typically cannot tolerate: alcohol, cigarettes, sometimes even bright lights, perfumes/smells, loud noises.

I am on antibiotics for my meningitis like symptoms, it is the only thing that helps, for how long I'm not sure. I also am vegan (too long of an explanation as to why but it is for healing put purposes). I don't eat processed food, caffeine, sugar, or gluten and that helps immensely. I've heard people say a combination of antibiotics and herbal protocols along with dietary changes helped and others say the opposite. Some are dead set against antibiotics some say they would've died without them. I just heard from a friend of a friend that her friend (thus the incomplete info I'm about to present you) that they weren't getting better off of American meds and mds. They went to Poland and after being treated for 8 years finally feel better from the treatment they are getting there. What that treatment is I have no idea. The friend who told me this suggested I google overseas treatments. This is one of millions of suggestions I've heard I've read even more opinions on treatment. The most important thing is that you have a diagnosis which you have. Some go there whole life never knowing why they're sick. You can now make a game plan and start finding treatment. Best of luck and this site is pretty good for finding new methods if you want to keep checking from time to time I've always found it helps to keep researching (as you can, pace yourself).

*the friend that was being treated in Poland was first treated here for 8 years THEN went to Poland and began treatment getting better shortly thereafter. What it is in Poland that's working for her I have no idea

Welcome to this site. I'll write more later.

Hi sewsewsonia~ I'm with you on having so much to learn about Lyme Disease. It's overwhelming to read what this disease can do to the body but I'm very glad you got an answer to what has been going on with you.
I think we are starting this journey about the same time. I'm doing antibiotics along with herbal supplements. I wanted to do both because I started juicing May 2012 and went chemical free with food and all. So, I understand the fact of not wanting to take something that your liver will have to process but I'm also ready for some relief so I've started taking antibiotics.
I'm adjusting to the meds better now and I think for now, I'm not herxing. I do believe from what I've read that you will do that every 4 weeks on antibiotics but it's part of killing out the bacteria.
I have an awesome Lyme doctor that is very up to date with the disease. I believe finding a doctor who has knowledge is important. Please keep us posted on how you are doing and if you decide to take antibiotics.
Wishing you the very best.....

Hello there, I looked carefully into your description of your symptoms.I'm sorry to hear that you've been struggling with lyme disease for so many years.Lyme disease requires a very professional medical treatment, but at the same time your mood is important, maintain a good attitude, and continue to fight with lyme disease.I was a Lyme disease patient once, after few years, I found out a serial herb medicine which called DR ZHANG. They’ve been doing a medical study on Lyme disease by using herb medicine for a real long time. By using their medicine, my symptoms has been greatly relieved. And You can find helpful help on there website www.hepapro.com. Wish you get well early!