Kimberley97
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- Saw my rhuemy today. Had my last Actemra infusion. We decided together that it's not working and I'm going to try simponi he said it was a sibling drug to remicaide and remicaide worked very well for me for quite a long time so I'm hopeful!
- I Just got done at the back dr. I have to wear a rigid brace. And there are 3 procedures to try to help with pain if they help he would consider fusing my spine but no surgery right now I'm bone on bone in there but he said over time that will fuse...
- I recently have had the feeling that my palms are really hot. I don't think they actually are it just feels like it. Any one else get this Meds? RA ? Any thoughts.
- My question is do any of y'all have a child who has developed RA? My daughter just turned 19 she has been tested a couple of years ago for symptoms (I have seronegative RA) the test came back negative but for the past few months she has had...
- I know I'm not the only one who feels this way but I honestly just want to give up so bad but I can't. I don't know how many of you know my history but I've really been through a tough time I've had double partial knee replacements double toe joint...
- So I have a few questions I have been on Actemra for a few months now. It wasn't helping at the lower dose so last month dr upped it and my labs showed a low sed rate for the first time ever. And my WBC was below normal which has also never...
- I haven't been on in quite a long time but decided to check back in. I have just been so overwhelmed for so long. Not doing good back probs have joined the mix and I'm going to need a thoracic fusion waiting to see a dr. I have pretty much gotten to...
- I wish to Goodness I could come on here and be super positive and cheer people up but the truth is I'm overwhelmingly sad. Nothing really new same thing can't have my meds yet still fighting jaw infection only lifeline is prednisone ( love/ hate)....
- I'm in so much pain. Still can't have RA meds till at least second week in October. I'm coming positively unraveled. And I'm paranoid becuz I have just developed pain and swelling again in my jaw. Oh how I hope it's nothing. I couldn't take it if I...
- Well got the picc line out. But have to stay on strong antibiotics for at least 6 more weeks and can't have my infusion for at least 6 more weeks. Kinda bummed about that. My potassium is also dangerously low.
- Hopefully I can get my picc line out tomorrow. And hopefully no more antibiotics. And pray to God that I can go back on my infusion treatments. I'm in so much pain everywhere. I will post and let y'all know.
- I had the surgery and the dr. Did find more infection in the jaw. So he removed a tooth and drilled out the bad bone. I've got 5 stitches in my gum so he must have really done extensive work. He switched me from penicillin to amoxicillin and...
- Well tomorrow's the day. I have to have a tooth extracted along with a large portion of my jaw bone. I pray this goes well and I can get rid of the infection so I can finally get back on my meds. I've had to stop everything but prednisone and I had...
- So I'm just wondering if I already have scripts for muscle relaxants and pain meds. Is there anything more that pain management dr. Could do for me ?
- I'm in disbelief that this is my life!! Oh how I wish we could get away with throwing a tantrum like children do. I went to the infectious disease Dr. And I have to keep my picc line in for another month in case I need it. And have to take 2000mg a...