zephaewryn
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- Is it possible to do great on IVIg for five months with no reaction...and then suddenly get a batch that gives you major hives and fever?That happened today - happened right after my infusion (within 15 minutes).Even with chills, fever, and hives -...
- I've had this weird thing going on for years - it happens in 'spells'. i can go months without a symptom...or it can hit me every day for a month. I am convinced that it is some kind of auto-immune issue related to the CVID. the doctors i've seen...
- 2nd full dose infusion today - my nurse calls my 60g Gammunex-c infusion a 'mega dose'. 1st full dose last month took about six hours...so I was a little startled today when we were done in three! I don't know if I bumped something - or if someone...
- Hope for RA and other auto-immune issues..http://www.healthcanal.com/immune-system/32942-Rare-cells-regulate-immune-responses-may-offer-novel-treatment-for-autoimmune-diseases.html
- http://www.ijoms.com/article/S0901-5027%2812%2900383-9/fulltext
- yesterday i got my 2nd IVIg - my first 'full strength' infusion. it went very well!the first infusion was a lower dose but it helped. by the last week though - i was really dragging again. when i went to my appointment - i think i was starting to...
- So...Today of all days, when I am just trying to keep my asthma controlled enough so that I don't have to go to ER...I learned that my job may no longer be funded in about three weeks (me and about 100 other people). That means that I could a) lose...
- My first IVIg is scheduled bright and early on Thursday of this week. I'm going to be able to do it "at home" - so I'm going to set up at my parent's house. I'll have good company (and cookies with any luck ;-)I'd be lying if I said I wasn't...
- http://medicalxpress.com/news/2012-09-scientists-link-stem-cells-immune.html
- It has been interesting to me to learn that there is a direct link between depression and the immune system.This article is dated - but I think the information is relevant."....The startling side effects of the immune-boosting drugs turn that notion...
- http://www.news-medical.net/news/20120901/Researchers-define-new-treatment-for-potentially-fatal-lung-disease-in-patients-with-CVID.aspx
- I've got it in writing. Major hurdle.results indicate:severely depressed FEV1 and FEF. IgG and IgA are low - IgM is normal. Both IgG1 and IgG2 levels were low suggesting my B cells have difficulty responding normally. IgG3 seems on the low end...
- It's a long rant - feel free to throw tomatoes. Last week i got this approval letter from the insurance company for a year for my treatment. big relief. with the labs back for the titers yesterday - it seemed like everything was falling into place...
- Delayed-type Hypersensitivity testing as part of CVID diagnostics (i.e. skin tests with PPD, Candida, Trycophyton, mumps, etc.).Did anybody else flunk their tests? I was a little concerned when I asked the nurse what this meant and she said that it...
- it seems there are a number of breakthroughs lately related to the immune system. there is reason to hope.http://www.registercitizen.com/articles/2012/07/30/news/doc5017217758006608895255.txt