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- I'm wondering how you're doing pretty lady. Has anyone else heard from drinkcoffee? A little worried.Dee
- Is anyone still recuperating from Thanksgiving fun? I can't seem to get my energy back.
- Good morning and happy Sunday (football day at our house). Update on my alpha-1 infusions. Still getting them every Saturday. Still hate the whole IV thing, but I find myself looking forward to getting an infusion. I'm finding that I have more...
- I see on here that some members don't like using their rescue inhalers. I'm really glad I have mine and I like it. Albuterol. I was just wondering why some of you avoid yours?
- infusion today. alpha 1 antitrypsin. I think it's #7. it's still intense. Bob and I both kind freak out throughout. But it gets easier. Drip drip drip for at least 1 hour. My husband is awesome. He sits right there and talks to me. Today we filled...
- I have seen some comments from people who keep track of their daily vitals and energy, etc. I am thinking it would be good for me to do that. I think the antitrypsin injections are beginning to help me feel and breathe better. If I track it I would...
- It seems like this disease is a constant struggle between hope and reality. I hope I can vacuum today, reality is I can vacuum one room. I hope I can walk 2 miles on the treadmill today, reality is I'm pooped after 1 mile. Maybe it's because I'm...
- Friday was my 4th infusion. The nurse came for the last time. She basically watched my husband give me the infusion. This time there was a slight problem. The needle in my vein poked through it so the saline leaked into my tissues. Infiltration they...
- Friday I had my 3rd infusion of alpha-1 antitryspin. My husband pretty much handled the whole process. The nurse watched and added a few comments here and there. This friday is her 4th and final time. I think we're ready.I still don't really feel...
- My second infusion of alpha-1 antitrypsin was much less scary than my first. Knowing what to expect helps. No side effects so far. I can't tell if I'm breathing better, but I can tell that I'm not breathing any worse. My husband is learning how to...
- I finally got my first alpha-1 antitrypsin infusion. It went smoothly. So far I don't feel any different. A little queasy. Next infusion is supposed to be next Friday morning. After the 2nd one I go to see my pulmonologist so he can. . . I don't...
- Today I get my first infusion of alpha-1 antitrypsin. Yesterday 3 large boxes arrived at our home. They were full of medication, an IV stand, and various other supplies for the infusion. I am kinda scared and kinda excited. We will see what happens.
- I was interested to see what RoseyPeach said about quitting the Advair and Spiriva. Do you have more trouble breathing? Did you replace them with anything. Anyways I was talking to my granddaughter on the phone yesterday and after 45 minutes I was...
- Hiring a housekeeper. Thought I would be relieved but just want to cry. I think it's because I realize I can't do everything I used to. Maybe once she has been a few times and my house is super clean again. . .
- Hi All,Went to the pulmonologist yesterday and my results were back. I have alpha A antitrypsin deficiency. I am relieved at least to know what I have. Now I get to start a regimen of once a week IV infusions of the protein I am deficient in. Ugh....