You are not alone. Last week I started a discussion titled, "Frustrated and scared" which mirrors your comments. Yesterday I was doing great. Today I'm okay. I'm learning to literally be still and know that GOD is GOD. I'm praying for your strength and please pray mine. GOD Bless

Yes, it does - most all the time. But in time, your endurance should improve. I find it amazing how quickly we lose the ability and how long it takes to get it back...

Hugs,
Dennis

No kidding you are not alone. Can be no fun at all sometimes. Just finished up a major project here and it took 5 or 6 days to do what I used to do in less than a day. Have learned to do just a bit at a time and eventually get to the finish line. Have also learned that a lot of stuff just doesn't matter that much anymore.

Best wishes to all...

Curt

I sympathize, deegran...you're SO right that it sucks!!! But maybe it would help you to go about things from the other direction. What I mean is, instead of hoping to walk 2 miles today, how about hoping to walk 1 mile. Then when you accomplish that, maybe you could walk a little bit farther, so you're actually exceeding your goal. Or set a time limit for yourself when you want to vacuum. Say, 10 min. rather than several rooms. Then after the 10 min. you can certainly keep on if you wish, but at least you've hit your goal. Does that all make sense? That's how I operate and it helps keep me from getting so down on myself. Also, as Curt said - some things just don't matter anymore.

Happened to me today. Plumbing leak needed to be fixed, and I could not even get the main line turned off til young neighbor came over and helped me . The old PLB effort was not enough. Sure glad he muscled it closed and lots of WD40 helped me turn it back on.

Frustrating when ya cannot breathe.... and no strength.

teespoon

I'm still working as a charter captain in the Virgin Islands so I know your frustrations and beyond!! You have to literally tell yourself to stop and catch your breath and get your lungs back to a normal breathing pattern when you engage a project. Otherwise, if you keep going knowing you have the strength but not the lung capacity, then you'll get caught really gasping for O2 and taking twice as long to catch your breath and waiting for your heart to slow down to a normal beat before you re-engage. I go down to the marina in the morning a couple of hours before anyone else shows up so I can prep the boat for the day without anyone watching me so I can take my 02 breaks between set-ups without anyone of my crew noticing. Sux! If I can only gain back 20% of my lung capacity of what I've lost I would be a happy camper. Be strong!

Miss the good old days of being able to fix what needed to be fixed around the house. I am blessed with having brothers and a sister who help me a lot.

It is very frustrating to not be able to even walk around the house with out losing your breathe

Dee, you did a wonderful job of suming up how I feel, thank you so very much. Venting is very important to us, it does allow us to blow some steam which keeps us from blowing up. Again thank you for putting into words what we all feel. -- Take care, Bill

some evenings i sit outside and get lost in my thoughts, i remember when life was so simple. Now everything is an effort...is it worth the pushing myself to exercise, taking so many drugs just so i can breathe and act normal to people around me while i feel like crap?

Well I WANT TO LIVE! so i must keep going n smiling n going....

Dee.............sounds like you are getting a lot more done than I am:(:(.............If I even had a treadmill, it would just be collecting dust:(:(

I HATE my life right now, compared to 6-8 months ago................funny, sad how quickly things can change................but I guess it could always be worse.

Like everyone here I am learning what my limits are and what I can and can't do..............and some things I will never be able to do again:(

Oh well........it is what it is........................could be worse:):):)

i am so glad i found this group.
i am blessed to have a wonderful friend that we share all of our life traumas with each other.
however, this year has been so awful with pain that i feel all i have done is complain about my health to her.
my kids know of my disease, but i don't want to talk with them about my medical problems, i just want to enjoy my time with them.
so finding this group is a godsend to me to find out others are scared, frustrated, tired or having a good day.
i was a single mom with a farm that worked hard physical labor all my life. what i used to do in a day now takes me a week. i'm learning to adjust, but sometimes i felt so alone.
now i don't feel so alone.
today i had a good day and i hope i didn't "over do" as tomorrow my daughter and family are coming to help me get some "winterizing" done.
i hate asking for help, but i am grateful i have wonderful people that will help--if i ask LOL

Jarca..........and we are glad ya found us too:):):).............Just sorry you had to :(

Lowering all of my expectations for myself has not been fun but I am glad that I am retired, can manage what I have and know that it is better than the cancer that killed my late husband; is better than the heart disease that killed other friends. Still frustrating though and I would like to stop thinking of myself as a Five Hour Day Person. That's how long I have any true stamina on any given day.

I hope that will change in time and I am not ready to give up!

Hugs, Cindy

I am so glad I found this group. It is really great to be able to say how you feel and others understand and empathize. Thanks for being my support group. Each one of you helps make my life better.

Cindy, your Five Hour Day Person description is sooo appropriate.

Hugs to you.