BobinPA

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 02/16/2021

  BobinPA commented on the discussion Husband just diagnosed with myasthenia gravis.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 04/05/2020

  BobinPA commented on the discussion Breathing problems.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 03/14/2020

  BobinPA commented on the discussion Coronavirus concerns.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 03/11/2020

  BobinPA commented on the discussion Coronavirus concerns.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 03/10/2020

  BobinPA commented on the discussion Coronavirus concerns.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 03/08/2020

  BobinPA commented on the discussion Coronavirus concerns.

• Myasthenia Gravis
  

  Coronavirus concerns

  Posted by: BobinPA

  Last Reply: Littlechef 03/22/2020

  17

  0

  Diagnosed about one year ago, I am on Cellcept and Mestinon which along with prism lenses do a pretty good job of controlling my symptoms of double vision, fatigue, and some choking at night.  I have no main motor muscle involvement at this point.  I have a family trip scheduled to Disneyworld in April which I have not yet cancelled, but may.  I am considering temporarily discontinuing Cellcept to hopefully boost my immune system (white cell count under 5) during the Coronavirus outbreak....

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 02/12/2020

  BobinPA commented on the discussion Questions about symptoms.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: BobinPA

  Posted: 01/28/2020

  BobinPA commented on the discussion Questions about symptoms.

• Myasthenia Gravis
  

  Questions about symptoms

  Posted by: BobinPA

  Last Reply: Eaglesgirl 02/13/2020

  8

  0

  My journey began last February with double vision.  After bloodwork, I was diagnosed with generalized MG.  Prism lenses and Mestinon have greatly helped with the double vision.  I had several months of IVIG treatment but have transitioned to Cellcept as the benefits of the IVIG wore off after 3 weeks.  Fatigue issues have improved.  I have no extremity function issues as well.  No issues with swallowing food or liquids either.  My current main complaint is choking on phlegm and...

• 

  Joined New Group

  Posted by: BobinPA

  Posted: 01/27/2020

  BobinPA joined the group Myasthenia Gravis.

• 

  New Friend

  Posted by: BobinPA

  Posted: 01/27/2020

  BobinPA became friends with TeamDS.