Eaglesgirl

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 02/13/2020

  Eaglesgirl commented on the discussion Questions about symptoms.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 11/04/2019

  Eaglesgirl commented on the discussion A thymectomy in the future?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 09/30/2019

  Eaglesgirl commented on the discussion moon face numbness and tingling.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 08/21/2019

  Eaglesgirl commented on the discussion Prednisone Side Effects?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 07/20/2019

  Eaglesgirl commented on the discussion Flair up.

• Myasthenia Gravis
  

  Flair up

  Posted by: Eaglesgirl

  Last Reply: cgreens 07/20/2019

  4

  0

  Had to go to ER at midnight last Saturday night. I have been having trouble breathing. Just diagnosed in April 2019, had thyrectomy in May with thymoma. Started radiation monday may 9th. Prior to that my MG has  been getting worse. I was put on a B-pap, that really helped and regular oxygen during the day. Have been receiving IVIG everyday and mega doses of steroids. Doctors say I am improving. Hopfully will be moved to intermeddiate ICU today and then to a regular room.Has this happened to...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Eaglesgirl

  Posted: 06/24/2019

  Eaglesgirl commented on the discussion New member.

• Myasthenia Gravis
  

  New member

  Posted by: Eaglesgirl

  Last Reply: Newfiemom18 06/24/2019

  5

  0

  I found this support group a few weeks ago. Finally I found people who are going through similar difficulties.I started having neck weakness and double vision the 3rd week in March. After two hospital stays I was diagnosed with Myasthenia in the beginning of April. I was put on prednisone,mestinon and I have IVIG every 3 weeks. Double vision is gone! Unfortunately I also had a mass on my thymus and had that removed in the middle of May. I am scheduled to start radiation treatments in about 10...

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  Joined New Group

  Posted by: Eaglesgirl

  Posted: 06/18/2019

  Eaglesgirl joined the group Myasthenia Gravis.

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  New Friend

  Posted by: Eaglesgirl

  Posted: 06/18/2019

  Eaglesgirl became friends with TeamDS.