Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and swallowing are most frequently affected.

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  • reillyp

    New Site for us

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    I'm finding the discussion board at www.neurotalk.org useful and easy to use. You just have to make sure to scroll way down thru the list of groups to Myasthenia Gravis. Give it a try ... we can share reviews of it here. Hopefully, the Daily Strength folks will take note of this and heed our call to help us reverse and fix the wacky recent "improvements" that have made it difficult for us to...
  • MGOhio

    I'm Back

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    Hello Friends,Finally, just got a working password reset from DS. I have been unable to access my account since the "upgrade". I'm just starting to get a feel for the new site, trying to keep an open mind. It sure doesn't seem as user-friendly as the old, but I'm sure I'll get used to it.I hate to see some of us migrate to other sites, as I don't want to lose the cohesiveness of this...
  • abrookez11

    Any one in my area?!!

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    wow this site has certainly changed!! wondering If anyone here is from Pennsylvania??
  • Hi all, I feel like I was *just* asking for doctor recommendations in London when I moved here, but I find myself once again in need of some advice! My husband and I will be moving back to the United States this fall, and I will need a new neuro in or around NYC. Does anybody have a doctor you really like, and who's responsive when you have a need?Thanks in advance, everybody. I don't know what...
  • chuckie1

    New site Sucks

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    I wish they woulod go back to the old site this new one truly SUCKS!!!!A nd I do not like uit at all!!!!! Chuck
  • lg0210

    New to this

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    Hi. This is my first time reaching out to those who have mg or may know someone who is diagnosed with myasthenia gravis. I was diagnosed with mg in June 2015. So, I've had a year to get acquainted with my "good friend". Throughout this year, I've done nothing but struggle with mg. even my doctors (I have 2 and a specialist) have never experienced anyone with symptoms that are ongoing and extreme...
  • Hello everyone,I just moved to Boise, Idaho, and I am looking for a good neurologist that specializes in treating MG.Any recommendations is greatly appreciated.Vicky
  • limpnoodle

    Anyone taking LDN?

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    i saw an old post concerning LDN ( low dose naltrexone). I have been taking it for neuropathic pain for a year now and it has helped with that, not made it go away, but it is more bearable. It also makes me more motivated and energetic most days. I'm still working on getting the right dose and spacing of doses. I'm currently taking 4.5 mg, but only every third day. Thinking of decreasing the...
  • Deb54

    Hi

    5
    I just joined have MG.Is this still an active group?Thank You,Deb
  • Hi guys, finally figured out how to post here! What a trial. Phew. Question for the cellcept alumni: how long did you have to be on cellcept before you could begin to reduce prednisone? I've been on it five months now, and am hoping to finally taper soon, though my neuro hasn't given me a clear timeline yet. Hope everybody's well!
  • xmas25

    New place to meet?

    Anyone have a new place to keep in touch ,keep helping and encouraging each other?have a good w/e
  • shadow597

    Imagine..

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    You are outside the house somewhere and you feel very weak. You don't even know if you can get up or shallow. You have your meds with you. What would you do? Would you take an extra mestinon? Some prednisone? That never happened to me,but I wonder what we should do in that case. Have you experienced something like that? I think at home you can deal better with that.Hugs to all of youu
  • I got setup, password updated and think I have figured out how the new daily strength MG works, so am testing a post. It seems that the list of posts is not in order of dates nor in order of last commented on, but haven't quite figured it out yet. I was comfortable with the old table view of posts and updates rather than the more conversational view in the new system. Anyway, when I post this,...
  • There is nothing user friendly about the "new" Daily Strength. I don't know why they had to completely reconfigure the site. This is terrible. I feel like my family has been stolen from me, in a way. Okay, enough grumbling. Stepping off of my soapbox now. I hope everyone is doing well. Hugs to all.
  • Lmckow01

    Symptoms

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    I an 32 year old that has been have chronic muscle spasms, weakness in legs, blurry vision, trouble breathing.Recently had ct of neck because I had a few lymph nodes and it showed residual thymus tissue.Waiting on bloodwork.Just wondering if this is indicative of Ma.Thanks