Newfiemom18

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 09/27/2020

  Newfiemom18 commented on the discussion Seronegative MG.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 07/05/2019

  Newfiemom18 commented on the discussion "Newbie" with aches.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 06/24/2019

  Newfiemom18 commented on the discussion New member.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 06/06/2019

  Newfiemom18 commented on the discussion Needing advice, support for MG.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 06/06/2019

  Newfiemom18 commented on the discussion Needing advice, support for MG.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 04/29/2019

  Newfiemom18 commented on the discussion Statin Drugs.

• Myasthenia Gravis
  

  Statins

  Posted by: Newfiemom18

  Last Reply: Alton 03/14/2019

  2

  0

  Does anyone out there with MG take statin s for high cholesterol?  How does it affect your MG?  Has anyone experienced increased cholesterol levels from their MG medications?

• Myasthenia Gravis
  

  Alcohol and MG

  Posted by: Newfiemom18

  Last Reply: cgreens 03/13/2019

  4

  0

  Is the occasional glass of wine or mixed drink ok with mg and the medications?  I'm on mestino n and cyclosporine.  I Just wondered what people experienced if they drank alcohol.

• Myasthenia Gravis
  

  Anyone able to stop mestinon?

  Posted by: Newfiemom18

  Last Reply: cgreens 03/13/2019

  3

  0

  Hi,  I'm curious if anyone has been able to stop taking mestinon for any length of time after doing their treatment with prednisone, cellcept or cyclosporine etc? Is that possible?I began treatment last summer with mestinon for general MG and added cyclosporine a few months ago(i can't take prednisone), and I am finding that I am feeling  much stronger on many days where I don't need mestino n . I probably take it two or three days a week but only half a pill once or twice a day. I just...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 02/03/2019

  Newfiemom18 commented on the discussion Mestinon.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 01/08/2019

  Newfiemom18 commented on the discussion First 6 Months- Still Fatigued.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 01/08/2019

  Newfiemom18 commented on the discussion First 6 Months- Still Fatigued.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 01/05/2019

  Newfiemom18 commented on the discussion CBD oil.

• Myasthenia Gravis
  

  Ivig

  Posted by: Newfiemom18

  Last Reply: alfredsr2 12/29/2018

  3

  0

  Hi everyoneHi everyone,  Can anyone tell me what it's like to get Ivig?  Any prep that was done?   What's the procedure like?   Side effects? Recovery time?  How often people had treatments?  Any information would be appreciated!

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Newfiemom18

  Posted: 12/12/2018

  Newfiemom18 commented on the discussion Just Diagnosed with MG.