drakeford1968

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• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 12/04/2018

  drakeford1968 commented on the discussion Help!!!! Medicare Advantage Plans and IVIG cost.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 12/04/2018

  drakeford1968 commented on the discussion Supplements.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 11/10/2018

  drakeford1968 commented on the discussion mestinon not a good fit.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 07/01/2018

  drakeford1968 commented on the discussion Cyclosporine or Tacrolimus.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 02/20/2018

  drakeford1968 commented on the discussion RITUXAN.

• Myasthenia Gravis
  

  Discussion Like

  Posted by: drakeford1968

  Posted: 02/20/2018

  drakeford1968 liked the discussion RITUXAN.

• Myasthenia Gravis
  

  RITUXAN

  Posted by: drakeford1968

  Last Reply: drakeford1968 02/20/2018

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  Has anyone grown immune to Rituxan ? I have been on this medicine for two years. I’m not feeling the same .   

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 12/28/2017

  drakeford1968 commented on the discussion What to do FAMILY.

• Myasthenia Gravis
  

  What to do FAMILY

  Posted by: drakeford1968

  Last Reply: drakeford1968 12/28/2017

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  In between infusion,My Neurologist made a big mistake this year. In October of 2016, my doctor felt the retuxmab would be the best fit for me. Years before, I was receiving IVIG, but of course a blood clot was my bonus. So the retuxmab works. Now a whole year has gone by and  no infusion. When she finally can to a conclusion that she needed to make her move. All of the infusion centers were booked up tight. My infusion is scheduled for January 17 2018 and I’m slipping fast. A few days ago...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 12/21/2017

  drakeford1968 commented on the discussion IVIG for Myasthenia Gravis.

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  Eculizumab ( Solirisp )

  Posted by: drakeford1968

  Posted: 11/20/2017

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  QuestionHas anyone had the pleasure of trying the new Myasthenia Gravis Eculizumab yet ? if so, please let M.G. family experience . 

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 09/11/2017

  drakeford1968 commented on the discussion plasmapheresis not working?.

• Myasthenia Gravis
  

  Discussion Like

  Posted by: drakeford1968

  Posted: 09/11/2017

  drakeford1968 liked the discussion plasmapheresis not working?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: drakeford1968

  Posted: 09/11/2017

  drakeford1968 commented on the discussion IVIG denied by my insurance co. HAP.