In between infusion,
My Neurologist made a big mistake this year. In October of 2016, my doctor felt the retuxmab would be the best fit for me. Years before, I was receiving IVIG, but of course a blood clot was my bonus. So the retuxmab works.
Now a whole year has gone by and no infusion. When she finally can to a conclusion that she needed to make her move. All of the infusion centers were booked up tight.
My infusion is scheduled for January 17 2018 and I’m slipping fast. A few days ago I went to the ER for a booster shot (125 mg steroid) injection. I felt better for a few days and I know the shot will not last. I’m tired, weak, slurping speech, some kind of flashing hits me then weakness comes and etc. She boosted me from 15 mg of steroid to 40 mg per day (it’s not going to work.
Ok family, WHAT TO DO BEFORE I SLIP IN MG CRISIS?
Does anyone know where I can get info for Type 2 MG. I was diagnosed in Sep 2015 and was told by Dr. I have hadmg for approx two years. I was resently told I now have type 2A and have been able to locate any info on it.
hi, I am new to this group. I've never really been able to talk about my mg am not to sure why but I just feel maybe people don't really understand it. I was diagnosed when I was 18 with mg so had it for a total of 11 years. Am just wondering really if anyone has ever just come off there medication Completely? Thank u in advance