In between infusion,
My Neurologist made a big mistake this year. In October of 2016, my doctor felt the retuxmab would be the best fit for me. Years before, I was receiving IVIG, but of course a blood clot was my bonus. So the retuxmab works.
Now a whole year has gone by and no infusion. When she finally can to a conclusion that she needed to make her move. All of the infusion centers were booked up tight.
My infusion is scheduled for January 17 2018 and I’m slipping fast. A few days ago I went to the ER for a booster shot (125 mg steroid) injection. I felt better for a few days and I know the shot will not last. I’m tired, weak, slurping speech, some kind of flashing hits me then weakness comes and etc. She boosted me from 15 mg of steroid to 40 mg per day (it’s not going to work.
Ok family, WHAT TO DO BEFORE I SLIP IN MG CRISIS?
Hi, I know it’s normal for diarrhea to be extreme with taking pyridostigmine, but has anyone ever experienced the opposite? My father has had diarrhea since having colon surgery 20 years ago. Recently diagnosed with MG, he now has firmer and less frequent stools. I’m curious if anyone else has experienced anything similar? TIA!
My husband was diagnosed with myasthenia gravis in 2016. He is extremely weak now. Takes 60 mg. Pyro 3 times a day. Trying to get in to see Dr., but can’t get in until middle of August. He was diagnosed also with dementia just after that at Center for Senior health in Akron. After much urging by family Dr. We went to a psychologist and after much testing he said he does not have dementia,...