Notalone4
Status: Accepting the obvious. This is normal for me.
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- After months and months of going back in forth because of signs of increased pressure. I'm now in my hospital bed awaiting another procedure and very nervous. I've been through this 5xs since February 2012. Started w/a vp shunt which clogged up...
- Looking for a good ns in IL. Does anyone have any good suggestions?
- Hey all, been gone 4 a while....Been through so much I really don't know where to start. In Feb. I had a vp shunt placed within a month it clogged off. My ns decided to wait and see if it would corrected itself and of course it never did, So in Aug....
- Ok call it what you want! But every since I had the shunt put in my lower abdomen & vagina hurts like crazy! At first I thought I stained something trying to urinate after surgery but now I'm feeling like it could be the tubing. Tell me if I have...
- I had my 1st va shunt fri& have recovered well except picked up a horrible problem with my memory as if it wasn't bad enough already. Had anyone else had issues with their memory after having a shunt placed? I called my ns& I'm waiting for a call...
- I'm currently@the hosp after having my very vp shunt placed this afternoon. Currently experiencing the worse pain possible. I hope it doesn't get any worse than this. Also positing for the best. Sorry guys, I'm always a huge baby when it comes to...
- My optho says that I don't have paps, but when my pressure is up my vision is the first thing to go. I don't understand this. Could it be that everytime he's checked them I had an lp before?
- Does anyone happen to know how often a shunt has to be replaced? How soon after the shunt is in place will I be allowed to go home? I'm going next Wed to see my ns & kind of already have my mind made up about getting the shunt, but still have a few...
- Hi all. So after leaving the hosp, I'm scheduled to meet with my dr's. Starting with the eye doc, he says theres not any sign of permanent damage & my neuro should look into vp before the vision loss causes permanent damage. Then my neuro sent me to...
- This may sound silly but has anyone ever felt something moving in the lower part of their head our upper neck? I have been experiencing this lately & it's sort of frightening. I've also felt strong pulsations in the temporal area. Very scary...
- Hello to all!It's been so long since I've been on here. I pray that everyone has made/will make alot of progress,& hopefully the Dr's are even wiser this condition.For so long I was at a stand still no progress until I met my current pain dr........
- I'm totally surprised to c many with ptc r still able 2 drive. Am I the only 1 frightened by this? I'm so dizzy 1/2 the time I can hardly walk & every time I attempt to drive seems 2b a close call? Very interested in knowing if, this could be linked...
- Hope everyone feels blessed on this beautiful day. So it's been about 2 months since I been on here. The last time I was highly upset because I realized my no wasn't treating me for chiari which seems to be causing all of my pain. After researching...
- Hi everyone! So after talking 2 Mary I learned much more about chiari I and the group. I can't believe my doc playing me like this. :) Guys please help if u can I have illinois medicaid and I will do my best to travel however far I have 2. I called...
- Hi everyone, hope ur all having a wonderful day. After doing more research on chiari 1, I remember my neurologist explaining this condition to me but it never went any further. So now I'm wondering how others have been treated for the 2? Most of my...