okapi2
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- Hey everyone. So I had been doing antibiotics for a while, and while I think they could work for some people and am glad I tried them, I don't think they're working for me. I went to a rheumatologist, and he wants to put me on Imuran.I'm scared,...
- Hey y'all,I have had low thyroid (diagnosed) for about 6 yrs. I was on 3 grains of a medicine called "Nature-throid." Recently, my thyroid went way out of whack, and I am experiencing the following symptoms:-swelling in my feet/ankles-amenorrhea...
- I obviously don't like being sick, but one good thing about having PM is being able to relate to other people who have disabilities. Yesterday (Christmas), I was actually thankful that I had to deal with this disease.My grandmother is 80 and has...
- I don't want to go into a full-scale rant, but I just wanted to complain SOMEWHERE. I hate this I hate this I hate this I hate this I want to lie on the floor and just cry but I'm afraid I won't be able to get back up... it would be funny if it...
- I'm wondering, when this is all over and you're feeling better, what do you want to do?I know we are all at different levels of illness and recovery. Some of us might be in remission, some of us may be newly diagnosed, some of us may be years into...
- Have any of you fellow females had this problem? I am going to the doctor on Thursday because I haven't had my period in 11 weeks. I am not pregnant. Is this related to PM? I have so many problems, the cause and effect gets all confusing (sure y'all...
- Hey y'all,Hope everyone is well. Anyways, I had been having some new symptoms lately, and I was wondering if this sounded familiar to anyone else? At certain times, my fingers and upper arms become very stiff. It's like, they aren't nimble?This...
- Hey y'all,I was talking to my uncle the other day who was recently diagnosed with ulcerative colitis. He told me that, after being put on steroids and other things, that what really helped was taking an aloe vera supplement. He says that his...
- Hey everyone,I have been vegetarian for a little over a year, and avoid dairy and egg as well. I have a muscle disease and was put on prednisone, so I began eating this way to avoid gaining weight on prednisone and just to try something new that...
- I like posting when good things happen!As of today i am OFF prednisone! Cross your fingers for me that it stays this way, and I stay feelin' ok!!
- Hey y'all, haven't been on in a while, but still sick (haha).I just need to VENT and get some encouragement after a lovely day at the doctor's office. Long story short, none of my options seem so wonderful right now, and the doctor didn't exactly...
- I'm wondering if anyone else has this problem, and if there's a way to stop it?I have always had problems with my hands and feet getting extremely cold, even when it's not very cold outside. My right index finger will turn white and get so numb, it...
- I was wondering, have any of y'all had problems chewing? Right now I don't seem to have any symptoms of the disease, I actually feel pretty strong. It's the damnedest thing though, I get periods of jaw weakness where it is difficult for me to chew....
- Hey everyone,I occasionally read the posts here because I am very interested in diet and nutrition, but I figured I'd go ahead and join. I am unable to exercise because I have a muscle disease.I never cared much about my weight because it usually...
- Hey y'all,I am keeping a blog about treating PM with the Marshall Protocol. Here is the link if anyone is interested!http://polymyositis.blogspot.com/