
shannonrebec
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- I have a 13 year old daughter who at the age of 5 was diagnosed with high functioning autism. We later found out at the age of 10 that she has Turners Syndrome. The doctors told us the autism was probably misdiagnosed and many of her issues were...
- My daughter was diagnosed with autism at age 5, tourettes at age 7, and turners at age 10. Turns out it wasn't autism after all, but the NLD that accompanies TS. She has trouble focusing, staying on task, following through, spacial perception...
- My daughter has been taking the GH shot for two years now, she is 12 years old. We have always paid a $500 co-pay for a three month supply and the insurance company has picked up the rest. Today when I tried to order her refill the insurance...
- Any advice/recommendations would be greatly appreciated! My daughter is 12 and has been on the GH shot for two years. We have always paid a $500 copay for a three month supply and the insurance company has picked up the rest. I tried to refill...
- Okay, so my daughter will turn 12 this June and she will be entering middle school in the fall. I know that relationships seem to come later for girls with TS and that is just FINE by me. The thing is though that she has never even mentioned...
- My daughter was diagnosed with celiac in late 2010. Since then she has been GF and we have seen her gastro a few times. At our last appointment he said to come back in one year. I'm just wondering if this is necessary. He does the same thing at...
- My daughter has celiac disease and in her case I don't think it is due to anyone else in the family having it. She also has Turner's Syndrome which can come with a cluster of differing auto-immune disorders and she ended up with celiac because of...
- Hi! I've never posted with this group before, but I am now looking for some advice. My husband was diagnosed with afib around the age of 30, he is now 36. Every time he goes to the hospital people comment on how young he is to have this condition,...
- If a girl with mosaic turners starts puberty on her own without the help of estrogen, can she also have a growth spurt or is that impossible?
- Hi everyone! Since putting our daughter on the GF diet in December, we have been giving her Lay's potato chips because they contain no gluten. However, I recently found out that they are processed on something where gluten products are processed. ...
- I would like to get some advice/insight from TS women who went through middle school. We are thinking of having our daughter home schooled or enrolling her in a private school. She will be going in to 5th grade so we have another year to mull this...
- I just want to put this out there in case it can help just one person. Our daughter was diagnosed with high-functioning autism when she was five years old. She fit the bill for it and we believed whole heartedly that was her issue. Fast forward...
- My daughter was diagnosed with Celiac this past December. A few weeks ago we had her follow-up appointment with her Gastro doctor. He wants to do a repeat endoscopy to make sure everything has healed. She has only been on the diet a few months. ...
- Does anyone know if gum is gluten free?
- When my 4th grader was diagnosed with Turners six months ago my sister-in-law said that she had once known/worked with a mom who had a daughter with Turners a few years back. She said they live about 30-45 minutes away from us and the girl would...