faith51's Posts | DailyStrength

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Connection between PTC & DAVF

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Hi Everyone ! It has been a long time since I have been on this support page. When I was first diagnosed with PTC 2009, I had just turned 50 years old. I was maybe about 20 pounds over my idea weight and overall was pretty healthy and fit. I had...
Chiari Malformation

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My Lp shunt is about 5 years old.I am afraid that I have Chiari Malformation.Any feedback?
Low Pressure with a LP Shunt ?

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I am so confused.. I started to have some problems..that I thought was symptoms of high pressure..loss of balance..sharp little stabbing pains in my head..pounding headache..when I would cough..Than last sunday, as I would bend over I would get a...
Pressure Headache

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Hi Everyone..Yesterday when I would bend over to pick something up..I would get a headache..last night everytime I would move in my sleep I would wake up with a bad headache. Its been 8 months since I had my lp shunt put in and this is the first...
POOR PITTY ME BLUES

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I was told by my neuro one time that I had control issues. Because I could not just except that I had IIH for no reason...I agreed...I do have control issues and right now i am in such a poor pitty me state ..because ..I have no control over this...
IIH PATIENT CONFERENCE

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Is anyone going to the conference ??I am.... just booked my resveration for thehotel and conference..I will book the flight tomorrow..Debi
Proctalgia Fugaz

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Proctalgia Fugaz is a fancy word for ..uhm....well... I will let you all look it up..So I was just told that my lp shunt tubing and the fluid dripping in to my stomach might be causing this condition. Is anyone else having this issue?I also want to...
Tornado Storms

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Praying for all in the path of storms..My son and his family are in Springfield MO..please pray for them...
A IIH Quilt

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Okay..Lets all get together and create a IIH quilt. Put it up for auction and donate the money to the IIh foundation. Please let me know what you all think !!!!
Up Date

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Hi Everyone,Its been awhile since I last posted.A lot has been going on the last few months. My youngest son got married, a few weeks later we had a big reception at our house. Than a few weeks after that my little niece came into the world. The...
Hot Flashes !!

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Does anyone have any good suggestions to help deal with them.... they are driving me crazy..
Our Brain

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Happy Sunday everyone...Has anyone ever got a straight answer about what the future holds for our brains..I did ask my NS..all he would say, was there is no long term effect on the brain and memory..but I read the post about how bad everyone memory...
Neuro Opt Visit

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Happy Friday everyone,Today I saw my NO for a follow up. It has been almost 2 months since my LP surgery. Dr. told me that my optic nerve swelling in both eyes are completly gone.We were both so happy...my next appt is in 6 months..I knew this would...
So, What did you do today?

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Had two cups of coffee earlier and now I can't sleep..I should know better than to drink coffee this late..So ..I thought..why not post....Today was a good day.. It was beatiful here in Sunny California so I decided to start on my veggie...
Pain after the LP Shunt

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Okay it has been 6 weeks since I had the lp shunt put in. I feel great, no HD.. no whooshing..nothing..I have a clear mind and love being able to multi task again at work..BUT !.. On thursday, the pain that I would get in m lower part of my body,...