Pseudotumor Cerebri Support Group

Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...

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faith51 06/30/2011

Is anyone going to the conference ??
I am.... just booked my resveration for the
hotel and conference..I will book the flight
tomorrow..
Debi

deleted_user 06/30/2011

Hey Debi,
I am going I booked the hotel and registered going to book my flight in the next day or two. Who are you going with? I am going alone and will probably leave out of LAX. I look forward to seeing you there. I Plan on going Thursday since it such a long travel day. I want to have Friday to relax and maybe meet up with others. paula

deleted_user 06/30/2011

Hi Debi,

I plan on going too. Will most likely leave out of Ontario but still in limbo on exact details as I am going to tie this in with a biz trip to ATL. Hope to see you there!

TJ

deleted_user 07/01/2011

Hi guys, wish SOOOO badly I could come but am invited to a good friend's wedding on the 12th in Iowa. :( Otherwise I would definitely be there. Tell us all about it! :) :)
~Elisa

faith51 07/01/2011

I will be leaving out of John Wayne on Thursday afternoon. I am looking forward to meeting everyone and to learn enough to come back and educate the doc's..lol..
debi

deleted_user 07/01/2011

I want to go, but it is too much $$$ - between the conference, travel and staying. I am still in limbo with disability and nickel and diming along on my husband's salary with the hopes we hear some good news at some point soon!!

Bring us back all some juicy news and research when you get back!! :)

Auntiechick00 07/02/2011

Its 2 expensive 4 my blood. I want 2 go so bad though. I will have 2 bring my mom with me an we just dont have the extra funds 4 us 2 go.

deleted_user 07/02/2011

I will be going with my hubby. I arrive Friday night, leave Wednesday afternoon. I have f/u appt with Dr. Katz Tuesday. For those of you that are wanting to go and want to share a room, I have seen many people post in FB groups that they want to share a room and have had great success. Also, alot of airlines are having great sales for tickets around that time.

deleted_user 07/06/2011

Booked to arrive late Friday night and leave Sunday evening.

Looking forward to seeing all of you!

ladyhorn1 07/10/2011

Hello!
Is anyone going alone? (female) And possibly driving from western New york/Cleveland/Buffalo Area to divide costs in half? Or possibly just hotel costs in half? I pay my share, live pretty neatly and don.t have too many bad habits.
Nancy from Buffalo

deleted_user 07/13/2011

Ladyhorn1, please post your request also in a Facebook group that is titled Pseudotumor Cerebri/ Intracranial Hypertention. I have seen posts that people have put up asking similar questions. Maybe you will have some luck there.

ladyhorn1 07/14/2011

Thank You!

deleted_user 07/14/2011

I booked my flight today. I will arrive Aug 11 at 7:15 pm. I look forward to seeing you there. Paula

ladyhorn1 07/23/2011

Just booked my hotel and ticket to the IH conference! They are extending the low rate dates. I will be driving in Friday the12th by midday! Please message me seperate to exchange cell phone numbers! I am so excited to learn, take notes and even take a bit of time for me....Nancy

deleted_user 07/24/2011

where do i find information about this conference?

deleted_user 07/24/2011

Mommy25boys here is the link http://www.ihrfoundation.org/intracranial/hypertension/more_info/registration-information-for-the-2011-ihrf-patient-conference/

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