readerleeder

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Checking in

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Hi group,I see there has been some recent activity on the group so I thought I'd join in with some chatter. If anyone would like to talk, feel free to email me. I'm doing remarkably well, by comparison to a couple months ago. I'm seeing a new...
Checking in

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Hi there, Group!I haven't been on in forever. I see the last post was two months ago so maybe this will fall into cyberspace and never be read, but who cares!I'm doing great! I just wanted to put that out there. Yes, I am still taking drugs, and I'm...
Meeting w/dr. to discuss DBS

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I have an appointment with my neurologist on Friday to discuss the option of DBS in the future. I will spend time doing some research before I go so that I can be a little proactive and ask somewhat intelligent questions. If anyone would like to...
Pain management

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Good day friends, With some guilt and much gratitude towards my husband, I am taking his advice and his lead in being a bit more proactive in regards to my health and PD. I confess to being a "head-in-the-sand" type and though I've been symptomatic...
Neupro in higher doses

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Hello Everybody, I've been on the Neupro patch for a couple years, starting at 2 mg and increasing as needed (with Dr. supervision, of course). This last increase in November put me up to 10 mg, which is higher than the company makes and requires an...
Update (it's been a while) & question

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Hi friends, I last posted the end of March. At that time, I was so wrapped up playing mother of the bride and wedding planner that there was no time for anything else. The wedding took place May 30 and it was picture perfect. Whew!The end of May put...
New symptom?

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Nothing new in the fact that I did not sleep well Saturday night, but what was new was a major pain in my leg - the outer thigh area. It was so bad, not like a cramp, just an intense ache. Then Sunday morning I felt like I'd been hit by a truck. I...
Morning pain and stiffness

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Good morning, One of my first symptoms was difficulty/inability to roll over in bed. I generally wake up pretty much where I fell asleep, but I wake up in pretty bad pain. I'm not sure I'd say severe, but the result is that it takes about 30-45...
"Do you ever "hit a wall"?

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I don't mean literally as in anger or losing your balance, but metaphorically, as in you just can't do anymore. I seem to be experiencing a lot more of these occurrences lately. No recent changes to meds (since early January), not attributed to...
Neurologist vs. Movement Specialist?

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We do not have a movement disease specialist in my area. The closest one is five hours away. According to my GP, the Neurologist I'm seeing is the best in town and he has advanced studies in PD. I'm not unhappy with him, but I can't help wondering...
What is the best way to get involved in DS group?

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Hi, I joined the PD support group on DS recently because it looked like a fairly active group. I've asked my doctors about support groups in my area and they are at a loss. I've been looking online for some time now, but most of the groups I've...

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