Honey the replies should start rolling in.soon. You did it right. I'd say this is a pretty savvy group and I've made a few long term friends You can ask your questions here in this format or you can send a personal message. If I get into a long two way posting I usually will just use the phone--so much faster.

WELCOME TO OUR GROUP. I will happily answer your questions as will many others.

When I joined I spent a few days reading old posts up to a y ear old to get a foundation underneath me.

We know what you're going through.
Hang tough.
WWW

Thanks,
Good advice. I'll try to do that soon.

Hi .you are not doing anything wrong , sometimes people are slow to respond,because sometimes some new people just get there answer and do not com back . So it is tough to give advise. Yes this is a good site with great people and mostly good information. Brear T - tharapin has a great resources just reed some older posts .I found great friends here . There is also many people with young onset and they can give you some feed back. therapin is one , wewillwin is also one , I am also.Just ask .Welcome to our group I hope you find what you looking for.

HI,
Welcome to the group. I don't have PD but my husband has had it for 7 years. He was diagnosed at 59 years, so it wasn't exactly early onset.
His symptoms are worse now but his progression is rated as slow.
He is facing a challenge next week as he has lung cancer and going for surgery.

There is another website called www.my parkinsons,org that you should check out. They are also very supportive to and also a early onset section.
LYNN

That website should be www.myparkinson's.org

Hi Reederleeder, I've been a member of D.S. Parkinson's group since 2011. I have been known to come & go from the sight due depending on my health and how I feel. I've just recently come back after being gone for a good while, due to med changes, dealing with depression associated with P.D., and not having any energy, & tremors make it truley hard to write. These things seem to come & go since diagnosed with P.D. I also had early onset, possibly in my late 30's but didn't have a clue what it was until 2011. I am 57, am also a mother & grandmother. I'd love to have you for a friend & try to be supportive & hopefully helpful when I can. Welcome to the group!

Hi sometimes it's a bit quiet here on DS but sometimes you hook up with someone and it's a wonderful thing. I would love to chat with you as I am 50 and have had PD for 12 or so years. I have 5 children and work part-time. I have my ups and downs and have used this support group for encouragement and advice. Keep checking back because sometimes there is a lot going on. It goes in waves.

Welcome to our group!!!

Not in my book are you doing anything wrong. I joined this group several years ago. It may be slow to respond. The responses might be spotty. But is is the best group I know of... better informed collectively than a lot of docs. Hang in, hang tough. (We wouldn't expect less of a grandmother of nine.)

WWW! i have tried to call you , email you, etc. Thought you had disappeared for good! Are you in hospice? Z and i have been very worried about you. Its so nice to hear from you. Are you lurking or back for a bit? Drop me some mail!


peace
BT

Hi readerleeder! Am I allowed to ask what area of the world you live in?

This group can be good about responses, but as others have posted, may also be spotty at times. Some of the best - and most valuable - PD information I have gotten has come from this group, so you are definitely in the right place!

I don't keep a journal entry but I do respond to questions here when I can, and I make posts as I have questions (or feel the posts are necessary). That method has always worked well for me.

I might be too early onset for you to want to reach out to, but I am 28. I started tremoring at 21 and was diagnosed several years ago. My PD isn't considered "classical" and so I have a few symptoms other people in our group seem not to have, and some of my symptoms are "advanced" for my age (for example: because I have a low platelet count I bruise easy, which has led my PD tremors to leave bruises on my body from the inside out -- I am SO not kidding! I also wasn't getting enough sleep in grad school and so my muscles got fatigued at the end of last year and my tremors caused a muscle in my heart wall to pull itself, also NOT kidding!).

If it helps I understand the struggle of PD with family ties; I am too young for grandchildren, but my daughter will be seven in a month and a half. :) I'm not working because I am in grad school (and the school places limitations on how much you can work while in the program), but before grad school I was the Director of Marketing and Human Resources for a local business looking to expand. It ended up being a corporate-shark type job by the time I was finished (I got business booming), so while I don't know what you do for work, I would be happy to talk about the work/school dynamic while raising little ones, and managing PD?

Feel free to PM me if you would like! I can be a little hit-or-miss but I do try to check this account every day. :)

I hope you are able to find answers, community, and hope here.

waiting for your involvement.........