langlois
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- Have been treatd for 7 years by hematologists with phlebomies tp keep it at that level now new doctor and clinic say 200 is perfectly fine Iron 23 Tibc 84 I was told it was best to keep level low to protect organs, etc I fear this will...
- I think I've had to many phlebs; my ferritin is now 11 and I feel constantly exhausted; is it safe to take in more iron, like with meats, etc.What is a good way to get that ferritin higher without causing any damages? From now on, I will be more...
- How can I quickly replenish some iron to my blood? last ferritin test was 8, I feel so tired. I lowered the level from 900 to 50, which the hem said would be good for me. Looks like there was a lab error and I was overbled. How much iron is...
- My ferretin jumped from 25 to 85 in a couple of months. After many phlebotomies it stayed well under 50. Any suggestion on how to keep this from happening again? I am having a phlebotomy, my level should be 30, I am not doing anything different...
- The Hem did an ultra sound a few days ago; he said that it is a new procedure that should be done on a yearly basis, checking for damage to the various organs. Sounds like a good idea, that way you could see early damages while still treatable. ...
- I think it is very high, what does it indicate and how can I get lower?Thanks from Langlois
- I saw on an information site that 86% is very high; what exactly does it indicate and what can be done to lower it?Thanks much, Langlois
- I went from 900 to 30 in about a year. Hem says to keep ferritin under 50. Phleb if over. He did an iron panel with those results> Iron 305,UIBC 51, ferritin 56, %transferrin 86.He seemed disturbed about the %transferrin saturation, told me to get...
- I normally have phleb every month - I had one yesterday, had been three months without one. I wonder: over the past week or so, I became stressed, depressed, anxious and my head was full of voices, almost panic. Also had a much higher blood...
- You can get lots of information on myeloprofilerative disease by going on MPD.net. I also have ET, maybe PV in addition to HH and find lots of help from the website and the daily blog that you can post on.
- My husband died 7 months ago; I had a terrible time with things in general and everyone said: it will be easier after six months: "they " were right but still have a difficult time sleeping. A couple of weeks ago I looked at my cozy (small) guest...
- My husband died six months ago today. I am doing somewhat better but I can't go back to feeling "normal" - I just don't feel right and think my symptoms may be similar to Ptsd. His death was fairly sudden and his end ugly: ventilator for a week,...
- My husband died in June, I went thru the early problems: crying, anxiety, depression, etc. I fought with attending grief groups and doing different things. Could not sleep. I have been on clonazepam 0.5g twice a day and 5 mg of lexapro. I also...
- I have been phlebbing for almost a year, plateaued at 260 for 3 months, then dropped to 120! My hematologist had suggested to go for more phlebs, so I went everyi 7 days and it worked! But now, my hematocrit was 38.2 last week, I had a phleb. ...
- I had a mini breakdown and cried all afternoon. No special reason, it's been three months and I had started feeling like I was getting in control of things... very disappointing. The counselor said I was not crying enough... Just wanted to share...