norma67
Status: ok is good enough for me right now.
Mood:
Ok
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- hello everyone, Jim and I have been on another adventuris . trip only no cruise ships involved this time! Another college graduation in Virginia beach, Virginia! 100 degrees every, single day we were gone! I almost expired on several occasions...
- does anyone have spasms in their kidneys! I mean right in the front of my belly on both sides. They are excruciating! I can't lay down or sit, the only thing I can do is lay back a little in the recliner chair. I have had these all along but...
- first time ever I have been given 6 months reprieve!! A year ago, I decided to see a physician within my own group, previously have been seeing their nurse oractioner. She was probably right on the mark, but this man that I am seeing now is.......
- We have all missed you so much and ecstatic that you are well enough to come back to the group! Thank you so much for all your advise but there is one thing no one knows about yet and that is, we have joined planet fitness again, so walking is back...
- As you all know, or most of you know, I have PKD type II which didn't make an appearance until I was 64 yrs. old. I am now 73. My stomach is mammoth, I have to wear spandex all of the time as nothing will fit around my waist, well, what used to be...
- My nephew had his kidneys removed yesterday. It was a very long and grueling surgery, it took 7-1/2 hours!! Do you all know how much a normal kidney weighs? Approx. 9.2 ounces! Danny's kidneys weighed 15 pounds together. I know we all have...
- I am getting very sick and tired of all this surgery!! This one will just be an overnight deal, but just the same, being put to sleep again to repair an inguinal hernia in my groin! My entire abdomen is encased with mesh but they didn't put it...
- Many of you might recall my nephew having a transplant st Vanderbilt hospital. He has been doing well until recently when cysts are breaking on the old kidneys and making him very I'll. the docs do not want him sick, so they are removing his...
- I have a friend with PKD that has had a transplant. He is unhappy with the way he feels? I conclude that the symptoms of PKD do not go away after transplant, just the illness from kidney failure itself? Does anyone else have some thoughts on...
- I am itching like a mad woman! I have a new kidney doc and he is just wonderful, I have never been to anyone so kind and considerate to an old broad like me. I have been having extreme issues with pain and this blessed man got my GP to write me a...
- Hi honey, I tried to send you a private message but becsuse I am not a friend of yours it won't let me. Anyway, I was on FB PKD support group tonight and I read about a woman that lives in the UK and she is having a liver transplant, in England! ...
- I know of no place that I can ask this question, but here goes. I am up all night and I mean all night with muscle cramps, which I understand is from kidney failure. I drink 10 ounces of tonic water before going to bed, sometimes it helps, others...
- I saw a kidney doc for the first time in about a year and a half, prior was seeing an NP. He gave me great news! He said I will probably outlive the PKD! By not having any caffuene or taking any anti-inflammatory drugs for going on almost 30...
- I learned today that the RH factor doesn't matter when it comes down to donation, and because I have AB negative blood, I can receive a donor from anyone!!!! I never knew this before! It's too late for me now, but I have children with the same...
- Has anyone heard or read many articles about using niacin to prevent cyst growth? I am reading yes and that it is effective in reducing cyst growth? Any input folks?