Polycystic Kidney Disease (PKD) Support Group
Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (polycystic) in both kidneys. The disease can also damage the liver, pancreas and rarely the heart and brain.
Yes, living so far away from my transplant center, I just have a very hard time getting any communication from them... and maybe there are new things coming out that I just don't know. Of course my issue is as well for my daughter.