k9girlie
Status: its been a few years, but im BACK!
Mood:
Ok
Offline
- So on another support group people are saying ssd is taking hs off the list. If it is not extended then it will be taken off the list effective July 12th, 2010! Anyone else heard of this? What about people already on disability? What about those of...
- so since my previous surgerys havent help the least. and since ive heard skin graphing is the sure way to stop the HS from coming back in that spot, im going to talk to my plastic surgeon about doing skin graphs in the next planned surgery in april....
- i have always said i dont want to have childern,simply because i dont want to spread this horrid disease to them. but im 21 and i want atleast a child. me and my husband have been looking into adoption.but the process is sooo long and its very...
- i havent been on in awhile, but i wanted to say thank you to all you that have supported me through my tough battle. i swear i think i love you all more than my own family. loljust got my wisdom teeth pulled out today, and OMG the pain is...
- so with all the drama with the recent newspaper article, i have made the decision and determination to write a book dedicated to HS. i want to tell everyone willing to read the book what we go through on a daily basis. basically everything i can...
- im trying so hard not letting my horrible family get to me, but im having a hard time handling it. im going to see my surgeon and primary doc tomorrow for post op and to see about uping my dose of anti-depressants. alot of people with HS suffer from...
- so my local paper published my story this evening for tomorrows paper, and they did a wonderful job writing it. they went into very detail of what HS is and how it really effects us. the even mentioned our support group. even though they didnt put...
- so i was finally able to get my local news papers to do a front page story on our horrid disease. if any of you intrested in the next coming 2 weeks or so it will be published. you can watch for it the reno gezette journal website. (www.rgj.com) or...
- so you all know i had surgery last week. well tonight my nightmare started again, with 3 humongous abscesses on my right thigh about 1/2 from my incision. the pain from surgery and now these is just unremarkable. i dont know what to do. when i was...
- hey guys i just added pics from my previous surgerys. both of my groin and chest and buttocks. caution though, these are graphic photos.
- ok so i just had my surgery on thursday, and i told my work a long time coming that i would need to be out for at least 6 weeks. on tuesday my human resources manager faxed me some paperwork for a personal leave of absence that i had to have my...
- like i said this is a very serious question, and i am very embarrassed about asking you all.ok, if you had surgery on your buttocks and couldnt sit on the toilet at all, how did you use the restroom. im actually really worried about it, because my...
- hey guys, i couldnt find a live chat room for us all to chat live so i made an ID for one. heres the URL. please come and chat live with each other.http://www.chatmaker.net/chatap/rooms/Hidradenitis%20suppurativa/
- ok so i seen a new doc yesterday for my primary. she asked me a lot of ?'s and came up with having my thyroid tested. turns out i have hypothyroidism, and am possibly looking at surgery.the symptoms i have all kinda link to the HS.fatiguehair loss,...
- hey all, i made a website dedicated to HS and how it makes us all feel.feel free to check it out and leave your support. :)the URL is:http://www.wix.com/k9girlie/hidradenitis-suppurativa