Hidradenitis Suppurativa Support Group
Hidradenitis suppurativa (hi-drad-uh-NIE-tis sup-yoo-ruh-TIE-vuh) is rare, long-term skin condition that features small, painful lumps under the skin. The disease manifests as clusters of chronic abscesses or boils, sometimes as large as baseballs, that are extremely painful to the touch and may persist for years with occasional to frequent periods of inflammation,...
so with all the drama with the recent newspaper article, i have made the decision and determination to write a book dedicated to HS. i want to tell everyone willing to read the book what we go through on a daily basis. basically everything i can think of about HS im going to write about. i was always pretty skilled in the use of words so i think it should come fairly easy, and with my workers compensation coming to an end so, i will have my settlement to devote to publishing this book and spreading the word for all who have HS.
so just to give you all a small taste of it, and if you think another topic should be added let me know. all additions will be properly cited.
here are some of the topics-
careers
home treatment
surgery
research or lack of it
doctors(or idiots)
disability
relationships
our future
the hope for a cure
having a family
getting diagnosed
other medical problems
coming out with HS
depression
my personal story
treatments
the people who dont understand
supporters( thats you guys)
and HS the disease
and if anyone would like to tell their story id love to add it in there also. since i dont know the first thing on how to write a book,im definatly doing my research. lol
so just to give you all a small taste of it, and if you think another topic should be added let me know. all additions will be properly cited.
here are some of the topics-
careers
home treatment
surgery
research or lack of it
doctors(or idiots)
disability
relationships
our future
the hope for a cure
having a family
getting diagnosed
other medical problems
coming out with HS
depression
my personal story
treatments
the people who dont understand
supporters( thats you guys)
and HS the disease
and if anyone would like to tell their story id love to add it in there also. since i dont know the first thing on how to write a book,im definatly doing my research. lol
I have the same idea, too, and I hope I'll be able my HS turn in to a book.
I think even good movie can be done about HS, but it would be hard for me to watch the actors suffering our everyday life (even that would be only acting).
Britt- you go girl! I think its a wonderful idea and obviously, im willing to help you in any way!! I think it may be a way to get our voices heard that we need help for a cure. Great idea!! :)