Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and...

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depotblue 08/03/2015

looks like Sally is causing trouble taking up a bed in the hospital trying to straighten out the neurology meets RA havoc going on in her body.

Thought I would start this get well card because I think her smaaaaart phone is working in the hospital and we can all harass, I mean cheer her up :)

Hope you get some answers Sally. Hijack the transport staff and get that MRI DONE and OVER with.

Sorry it had to come down to this. Don't eat the pudding.

Depot

altoclef 08/07/2015

Let 'em have it with both barrels. This isn't a simple situation, and you're not going to get anywhere without challenging these fools to do their best thinking.

bcatz 08/07/2015

some of it sounds like small fiber neuropathy and some rheumatoid cachexia, but that would be bilateral thighs/quads. That biopsy would really be helpful if it worked.

depotblue 08/08/2015

you still taking that plaquenil and sulfasazline combo while inpatient? any chance you could go off it for a month?

depot

depotblue 08/08/2015

have the doctors considered taking you off these two DMRARD meds for a month while you are on the new meds and newer pain meds, just as a rule out?? don't want to see your ra worse but since you are in this pickle seemed like a good time.

have the great gaggle of good docs while doing their early morning 4 am rounds our our poor sleeping Sally talked about your RA being untreated biologic wise due to your lungs and its effect on other systems? or is this a non effective conversation?

keep on resting. no forget about that, that's an oxymoron in a hospital right? keep on sleuthing!

hugs

depot

deleted_user 08/08/2015

Hoping you are receiving answers and relief. I hate to read this news. Suffering and pain is awful:( I will keep you in my prayers!!
Hugs!
Debbie

lady3jane 08/09/2015

I'm so sorry to hear that you're going through all this! I hope they find out what the problem is soon.

Tell your doctors that we all are watching them and if they don't do a good job, they'll be hearing from us! (just kidding)