Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and muscles... The symptoms that distinguish rheumatoid arthritis from other forms of arthritis are inflammation and soft-tissue swelling of many joints at the same time (polyarthritis). The joints are usually affected initially asymmetrically and then in a symmetrical fashion as the disease progresses. The pain generally improves with use of the affected joints, and there is...

2 Online
2 Online
  • Brownsfan

    Just diagnosed

    1
    Hello first time posting on here.. Just diagnosed today with RA had Tetanus shot and TB test today if TB test negative come Friday will start Methatrexate she said 6 pills once a week for 6 weeks then will start Enbrel or Humira injection. Really nervous about all of this pain hasn't been to bad so far just swelling in my fingers but first time being on any medication. Can anyone give me feedback...
  • WarriorGal

    UPDATE: My Hands

    5
    Saw my hand therapist, Eve Zucker Strauss today. She is the BEST! We go back a LONG! She has provided my post-surgerical hand therapy for more surgeries than I can remember. She is ordering a splint to hold my fingers in place - and THEN we will do some strengthening exercises. Had I gone to just any ole PT, they likely would have had me do exercises straight way which ould not have helped and...
  • Liza06

    New meds again

    2
    After calling the rheumatologist every day as many of you told me to do. They finally let me come in today. Thank god! So they kept me on prednisone but made the tablets 5mg every 6 hours and put me on SULFASALAZINE 500 mg 3x a day. Thats just for now until I get some test done and hopefully then I can start a med called Humira. I've read the pamphlet and it sounds great except for the injection...
  • poolgirl

    Encourament

    6
    I am 58yo and diagnosed with RA 4 yrs ago. I have tried multiple treatments including methotrexate, Enbrel, Orencia, Humira, rituxan, and actemra which have all either helped slightly for a short time or not at all. In 12/14 had respiratory arrest from pneumositis and aspergillosis pneumonias and in coma 1 month/in hospital 7 months due to paralysis from critical illness myopathy and multiple...
  • nonightshades2

    MTX has to go

    1
    Has to go for at least three weeks and then at a severly lessened dose if at all depends on what RA says. So says my GP after chest xray and ct scan. Bottom 1/3 of right lung is cloudy. Been fighting this stuff since March. The MTX poison worked well in concert with Humira but as GP said yesterday, "We'll figure out other treatment options that won't kill you and get you through the pain." ...
  • Has anyone ever done this? I got back from our camping vacation on Wednesday afternoon and I usually take the shot in the morning. I got it out and put it on the kitchen table, like I usually do, and unlike what I usually do, which is sit at the table til the prednisone starts working, I walked away to get things done from camping. Two and a half hours later I wandered back into the kitchen and...
  • Childhood trauma leads to lifelong chronic illness — so why isn’t the medical community helping patients?https://acestoohigh.com/2016/08/10/childhood-trauma-leads-to-lifelong-chronic-illness-so-why-isnt-the-medical-community-helping-patients/?utm_content=buffer54f5e&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer
  • WarriorGal

    Sharing good news...

    6
    NOTE: I share this good news not to create jealousy but to give ya'll HOPE!!Many here know I was in remission on Orencia for 6 years then "had to" (?) go off because for infections, starting with the flu in Feb. and winding jup with C. Diff).Was off for 3-4 months and went into a FULL body - head to toe - EXTREME flare up. Didn't know if Orencia woudl ever work again.In MAY, I started back on...
  • Liza06

    Not feeling good

    I knew since last night that I was going to wake up broken. Im now taking prednisone 2x a day but Im in still so much pain. The hospital gave me tramadol and it does nothing. Today is friday, no school until Monday and I know my kids are going to expect some kind of plans for the weekend and all I want to do is curl up under the blankets and stay there the whole weekend. Anyone know of some...
  • This is mostly a venting for my mental health kind of post but I will gladly take advice and words of wisdom.I'm between a rock and a hard place right now. I was diagnosed with RA, but then a rheumatologist called that diagnosis into question and stopped DMARD's. She was probably wrong, but if it isn't RA, it is almost certainly PsA, Lupus, MCD, and/or something else in that family (all of my...
  • sweet7474

    Hopeless

    9
    I was diagnosed with RA March 1011. I am a 42 year old woman dealing with this chronic pain and swealling on a regular basis... I am getting depressed! I used to be so active. Does it ever get better? What do you guys take for pain that actually works? Imhate living with this. How do you guys cope?
  • During my recent flare up my rheumatologist ordered some lab work. I got the results today. One test was slightly out of range. I scored 1:40 on the ANA titer test with a low level antibody level. The lab report itself read "ANA Screen, IFA - Positive" and the ANA Pattern was Homogenous. I wasn't sure what this test was until I looked it up and realized he was more than likely testing for Lupus....
  • Hi,I just joined this group after doing a google search about side effects from Actemra. I have been on this drug for over 5 years and this past year feels like I have bloated up, had frequent hot flashes, and have been dealing with cardiac issues. I'm well past menopause so the hot flashes shouldn't be happening. I;m talking with my doc about changing meds. She does tell me that Actemra can...
  • https://www.myrateam.comI found this site yesterday and am absolutely loving it.
  • I've been diagnosed for 8 years, rheumatoid arthritis, things are progressing seemingly out of control LOL.I'm seeing a new doctor next week due to a relocation and not being thrilled with the Doctor I had found. Biologics weren't helping my inflammation and I had shingles twice, 9 months apart on two different biologic, when sulfazalazine was causing major headaches he decided I should quit all...