Rheumatoid Arthritis Support Group

Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction. The disease is also systemic in that it often also affects many extra-articular tissues throughout the body including the skin, blood vessels, heart, lungs, and muscles... The symptoms that distinguish rheumatoid arthritis from other forms of arthritis are inflammation and soft-tissue swelling of many joints at the same time (polyarthritis). The joints are usually affected initially asymmetrically and then in a symmetrical fashion as the disease progresses. The pain generally improves with use of the affected joints, and there is...

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  • SusieG

    Hard mouth sore/lump

    6
    Maybe completely unrelated to RA or meds, but have any of you had a mouth ulcer that turned hard and just remained (2 weeks now)?  Not red or painful at all.
  • SusieG

    Misunderstanding

    9
    So many of us have touched on the fact that the population in general assumes that RA is just arthritis.  I get it; unless it has touched your life or someone in your life, you probably wouldn't know what it is.  I know I didn't.What's sad today is, after 4 weeks since my last MTX, my husband says to me "so how's your arthritis?"
  • oceans11

    This is a frustrating disease!

    5
    So after a year being off meds (MTX 2.5mg) I got back on it @ 5mg once a week of course & I'm also now taking Folic acid regularly. Prior to being put back on I started feeling little pain here & there & every month more joints were being affected even though the intensity hasn't really increased maybe on a level of 1-10 it's a 2-3 & moves around A LOT! Ankles/feet have been affected the most...
  • nickiraeleen

    Desert Rat

    4
    (sorry about the double post)I have noticed in having trouble gripping my handle bars when I ride. Does anyone who rides have suggestions about what I can do. I wear gloves, but my hands just can’t physically hang on. I like to put heating pads in my gloves, which helps…. But not the best solution.
  • nickiraeleen

    Raptor hands......

    8
    Something new I have noticed is that my fingers are starting to curl when I am having flairs. Like I have raptor hands; like i could be in a Jurasic Park movie. It’s kinda a pain in the ass when I am trying to be productive. Does anyone else have this problem, or rather have a solution around it? I have a family member who has RA but she has very little problems with her hands. Does it really...
  • jamdds

    I'm a scared RA neophyte. Please help.

    0
    Hi, I had pain/swelling/warmth in my wrists 2 and 1/2 weeks ago out of the blue. Saw a MD who ran tests. CRP negative RF positive ANA negative CCP strong positive (179). So I am assuming with the RF+ and the strong CCP it's diagnostic for RA. I am waiting for a call from rheumatology, but in the meantime, could those of you who are on this journey please share if there are things you WISH someone...
  • gryd1963

    Humira and shortness of breath

    Hi guys,It's been a while since I posted. I had a crummy winter and never got the RA under control. I have been improving, however, since starting Humira a couple months ago. The problem is ever since I took my last dose on Thursday I noticed a lot of shortness of breath. I can't be positive it is Humira but I was fine before my last injection. I plan to call the doctor on Monday but my question...
  • WarriorGal

    EXHAUSTED TIRED!!

    Hi - For those who don't know, I am 72 and in remisison on IV Orencia and IM Resuvo.  No pain.I am tired, tired, tired. Sleepy tired. I feel like I never get enough sleep. Maybe I don't. Eight hours is not really enough for me but there are only 24 hours in a day and I am not tired enohg for be - or cant motivare myself to get up and washed and into bed - after being awake less than 16.I am also...
  • Sistahbear

    Having a rough time

    5
    I believe this is year 4 for me with RA. So far everything we have tried has been unsuccessful. Currently my RA meds are : Rituxan infusions, Plaquenil, Leflunomide, and Prednisone as well as Norco that is prescribed by my pain management doctor. I hurt so very bad. In my shoulders, elbows, hands, hips, knees, Achilles, and toes. Thursday I am going to be sedated so they can do an injection into...
  • SusieG

    Update from deleted thread

    5
    Off MTX since 1/11 and AST/ALT numbers right back to where I started!!!   WHOOP! WHOOP! I see doc on Tuesday and hope she'll go for putting me back on, but only 6 pills instead of 8 and see what happens.  Happy Weekend Everyone!  It's supposed to be unseasonaly gorgeous here in eastern PA!
  • katie

    Still waiting for Humira: pro tip included

    7
    I haven't checked in recently (this site is not user friendly, is it?  yeesh) but wanted post a brief whining update just becaue you all will understand, and I want to share one really important tip for anyone who gets a scrip for Humira or another injectable.  I was prescribed Humira on Dec 19.I am still waiting for it.  I have logged 10.5 hours on the phone since mid January. The specialty...
  • yazzy23

    Symptoms but no diagnosis yet, advice appreciated!

    Hi,I've been having a "low grade fever" since October with some joint pain (elbows, knees, morning stiffness in feet). Also I've had several fatigue. I e been to so many specialists with no real answers yet. My RA factor was negative. However my CCP ANTIBODY test was weak positive. I found my results online through the portal and have left messages for doctor to call back but he never did....
  • mrwojo

    Update with several questions

    8
    Good morning My name is CHris I am a 48 yr old male history of OA in neck back hips and knees for several years . Approx 2 to 3 years ago I began to have pain in my hands after a few moments of using them . The pain would be very intense and last maybe 2 or 3 minutes and I could continue to do whatever pain free. My dr noted that my hands were swollen and red . During this time I had esr and ccp...
  • Mommagigi74

    Guidance

    7
    Hey everyone.  I'm still on my initial 3 month trial of Plaquenil to see if it is going to work before he he decides if I have to take Methotrexate.  My 3 months will be up March 6th, I see him again in April.  The thing is though, I'm hurting more every day, in new spots, new ways, and it is almost constant.  My feet hurt to walk on them and I have to change shoes each day because they can't...
  • deleted_user

    RITUXAN IV INFUSIONS

    6
    Has anyone tried Rituxan IV infusions for Rheumatoid Arthritis? I have had RA for 30 years and have tried almost every oral medication, injection and infusion treatments available and had to discontinue them over time either due to side effects, didn't work, infections, etc.. I received my first Rituxan infusion about 2 months ago, had the second one two weeks later, and have had horrible...