Pulmonary Embolism Support Group
By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death.
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Now I KNOW that taking them can raise my INR, I've read about it on various websites, including our NHS one here in the UK.
My point is a few months ago I was taking constantly 8 tablets a day (max limit) of either co-codamol or paracetamol, which according to the NHS site has the same effect on INR, whichever I take. Gradually I have reduced this and put up with some pain or some pain has disappeared, I got it down to 4 painkillers a day and am trying to reduce it still farther down. Now...my three recent INR tests were as follow....3.7...3.0 and now 2.3. over 3 months of testing, following the reduction in my PK intake.
Has anyone here experienced such a drop in their INR result from taking less pks? It bothers me that my INR may drop too low if I cut out the painkillers entirely, which is my plan...I get retested in a week as it bothered my clinic nurse that I'd dropped INR value consistently each month. The NHS site says it can take 1-3 weeks for PKs to affect INR in a "raising" way, so I'm assuming the reverse is also possible.
Also a small update...I'm STILL waiting to see my consultant...now for 4 test results....hoping they come back OK...
My point is a few months ago I was taking constantly 8 tablets a day (max limit) of either co-codamol or paracetamol, which according to the NHS site has the same effect on INR, whichever I take. Gradually I have reduced this and put up with some pain or some pain has disappeared, I got it down to 4 painkillers a day and am trying to reduce it still farther down. Now...my three recent INR tests were as follow....3.7...3.0 and now 2.3. over 3 months of testing, following the reduction in my PK intake.
Has anyone here experienced such a drop in their INR result from taking less pks? It bothers me that my INR may drop too low if I cut out the painkillers entirely, which is my plan...I get retested in a week as it bothered my clinic nurse that I'd dropped INR value consistently each month. The NHS site says it can take 1-3 weeks for PKs to affect INR in a "raising" way, so I'm assuming the reverse is also possible.
Also a small update...I'm STILL waiting to see my consultant...now for 4 test results....hoping they come back OK...
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Thank you for your words, I know the internet can sound like you're having a go when you're not, so sorry if any of my post feels that way...
Also more than diet can affect your INR. Medication, activity level changes, calorie intake changes, etc could possibly affect your INR. Did I read in another post that you'd quit drinking? I would suspect that could have a role in your changing INR too, and be some of the reason for the weight loss.
But ultimately, who cares if the nurse doesn't think that's what's causing your INR drop. Does it really matter after all? It's not worth getting stressed out over. Take your meds, get your INR checked regularly, and that's all you need to do. I know that seems over simplified but really, that's what it all comes down to. I've been on warfarin for 4 1/2 years and have been stable for months at a time, and then not. It's just how it goes with this drug. Seriously, the stress and worry about it all does not help.
Me, I've been trying to eat a lot better the last few months. I've noticed that weeks where I stay around 1500 calories a day, my INR was much higher (usually around 3) than weeks where I'm taking in a lot more calories.
Higher activity level can affect it too and so can some painkillers (I had surgery last year and my doc switched me off the pills they gave me in the hospital for some that had less affect on INR). Also, some things might affect it for one person that don't for another.
You're letting these nurses spaz you out, when it is clear that they don't entirely know what they are talking about. It is too bad that they are so focused on diet, because warfarin is affected by pretty much everything, and it sounds like they are causing stress where none is warranted.
I wouldn't give it another thought. Let them adjust your dose and go on with life. You'll drive yourself totally nuts trying to figure it all out.
Most of my weight loss is from purely the change in diet and I am now starting to get more active in an effort to lose even more (I was told it's pretty much the only reason my clots formed as far as the consultant was concerned). Due to activity I may be eating a little more, but I know to steer clear of too much Vit K, I guess just the general calorie count is adding to it.
I'm guessing my calorie intake is something like 2000 a day, I've never really counted it to be honest with you.
Thanks for the advice and I'll try to heed it and "spaz" out a bit less, lol. I just can't help it sometimes, this is the first "major" thing I have had happen to me, so it's not like I know how to deal with it well. Thanks again, Stuart.