Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Brain & Nervous System
Pseudotumor Cerebri Support Group

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Hey everyone, i'm 17 years old and was diagnosed with IIH about 4 years ago at 13 years old. I was diagnosed after an... READ MORE
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I was diagnosed officially about a little over a week ago. Everything moved so fast. I've had two spinal taps since... READ MORE
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So I've been off diamox for 3 months and now my headaches have returned. Anyone else go threw this? I'm still trying to... READ MORE
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Hi,I was wondering if you all knew of a natural alternative to Lasix that isnt as likely to cause dehydration. I tried... READ MORE
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I was diagnosed with pseudotumor cerebri less than a week ago. I've cried plenty, wanted to cry yesterday but I think... READ MORE
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My daughter was diagnoses after a dramatic loss of vision and had emergent surgery to insert a shunt. She sees a... READ MORE
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Hi.My daughter was diagnosed with IIH about a month and a half ago. We have spent a lot of time in th ER so far. We... READ MORE
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Hi everyone, I was recently diagnosed with psuedotumor cerebri/IIH/stricture in transverse sinus (surely off with the... READ MORE
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I was just diagnosed with IIH about a week and a half ago. I had a spinal tap and then started taking diamox. How... READ MORE
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Anyone have luck with Topamax? I've been on Diamox with resolution of symptoms, but insurance stopped covering it so my... READ MORE
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I was diagnosed with IIH in June 2020, but I had to take nearly a month off due to how bad my headaches and vision... READ MORE
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My doctor (neuro) prescribed that I take 1 a day everyday and I am just wondering what the side effects will be and if... READ MORE
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Anyone on here lucky enough to have both? They are leaning that way for me. Little freaked out that they say treatment... READ MORE
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hi. I am wondering if this symptom is related to my IIH history. It definitely seems like a neurological problem. ... READ MORE
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Anyone else ever had their occipital nerve swell at the back of their head?!I had about 2 weeks of insane pain... READ MORE
