iihananymous

Activity

• Pseudotumor Cerebri
  

  Losing hope

  Posted by: iihananymous

  Posted: 04/16/2026

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  Hey everyone, i'm 17 years old and was diagnosed with IIH about 4 years ago at 13 years old. I was diagnosed after an annual eye checkup where my doctor found an enlarged optic nerve, followed by a 3 day hospital visit where i was given a spinal tap and an mri. I took acetazolamide for about 1 year with minimal side effects (just the occasional tingling sensations and the extra peeing)  and was told by my neurologist it was safe to stop medication and regular neurologist visits were no longer...

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  Joined New Group

  Posted by: iihananymous

  Posted: 04/16/2026

  iihananymous joined the group Pseudotumor Cerebri.