Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Hi,
I was wondering if you all knew of a natural alternative to Lasix that isnt as likely to cause dehydration. I tried over the counter duiretics after I stopped Lasix but still ended up with severe muscle cramps regardless of what I did.
I'm in need of something while I wait to speak with my Neuro- opthamalogist...
Thank you!
If you want an alternative to medication, try treating your sleep apnea. and if you think you don't have it, prove it and go get a sleep study.
I am having my sleep apnea treated ( since 2019)and did take extra potassium as well as other essential electrolytes but nothing helped. I just recently found out I have cervical facet syndrome and have started the treatment process for it. Some of the muscular issues from the CFS may have been made worse by the Lasix. I have not handled any of the prescription diuretics well no matter what I have done. I usually don't handle most prescriptions well because I tend to get the bad side effects that do not go away after the initial month of treatment.
If you are on CPAP, you need to consider switching to BiPAP. The expiratory pressure of CPAP will increase ICP. I could tolerate neither, and had jaw surgery which advanced my mandible by 1 cm and apparently took the pressure off my jugular veins so that my ICP could drop: this put my IIH into remission.
If you have trouble with your neck, you need to consider the treatment very carefully. See, a narrow airway that causes sleep apnea is also present during the day and it leads to compensation of neck posture, causing a forward head posture. This puts a lot of strain on the neck because of how heavy the head is. So the neck joints start degenerating. The forward head posture may contribute to the increased intracranial pressure by narrowing the jugular foramina and decreasing cerebrospinal fluid drainage. But the OSA also increases ICP, and if you have a neck fusion then you can no longer go into that sniffing position with your neck in order to open your airway. It might make more sense to have the jaw surgery. Then you open your airway so that you no longer need that forward head posture which destabilized your neck to begin with. and you may also get better CSF drainage which will improve your IIH, outside of the improvement you will see from treating the OSA definitively rather than blowing pressure into your throat which is just a bad idea with ICP.
If you can get to Dallas, go see Dr. Larry Wolford. or Dr. Reza Movahed in St. Louis. They do the counterclockwise maxillomandibular advancement which has been shown to help OSA and IIH.