Prolactinoma Support Group

A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's prolactin levels fall unless she breast feeds her infant.

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  • sdczernicki

    L-Tyrosine B6

    Hey guys,I haven't been on in a long time but just wanted to put out there a new treatment I"m doing for my prolactinoma that I started with a ND a month ago. Its Tyrosine and B6... thats it. Apparantly those are the precursors to dopamine. And, when dopamine floods the system (just like the dopamine-agonist drugs bromocriptine and cabergoline) prolactin levels will come down. I will let you know...
  • deleted_user

    cabergoline side effects

    Maybe there's already a discussion out there for this, but I thought I would start a new one to see if we could compile some specifics. I just started cabergoline (3 doses down already) and wanted to hear about experiences people have had on it. I know I was terrified (partly because I know too much already & partly from what I've read online) and really wanted to know what to expect. What...
  • cindyL

    Hello.. i'm new here

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    I just diagnosed hyperprolactin. My hormones prolactine is 365 nanogram and then i consumed bromocriptine everyday. And about 5 months my prolactine is 114.0 nanogram soo happy! But now my prolactine is increased until 186.4 nanogram.. I'm so saaad. So my doct want me to check my brain with MRI. Anyone with me?
  • klo257

    Med issues

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    Hey there everyone! I'm here looking for medication alternatives. I've been on both bromocriptine and cabergoline and I am tired of dealing with the horrible side effects- no sex drive, mood swings, constant dreams which are causing sleep disruption, insomnia, migraines. Anyone found and Ned alternatives? I'm open to homeopathic means and any other things you may have found successful! I'm to the...
  • emilylouise6

    Does anyone feel the same?

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    Hi, I’ve been on cabergoline for a long time. My prolactin levels dropped really quick and everything is nicely controlled. I just wondered if any of you ever suffer with low moods/depression from the tablets? I’m unsure whether they are actually causing it or just heightening what I’m feeling? I know now I definitely feel more down the days after I’ve taken it. Also when I think back...
  • deleted_user

    Stopping Cabergoline

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    Hello everyone, I'm new to the forum and was hesitant to join, but this seemed like a very friendly and accepting group. I was diagnosed with a 4mm microprolactinoma in May of this year. I was lucky to have a nurse practitioner that put the pieces together and ordered my MRI, because I would have never figured out what was wrong (even though I'd had symptoms for almost two years prior). My...
  • siobhand

    struggling

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    I'm just a 20 year old struggling with the constant fowl moods, feeling of loneliness and constantly feeling like no one understands what im going through. Anyone else i can talk to who feels like this?I have also never came across anyone my age who has been diagnosed with this, my doctor said that its rare for someone my age?
  • Julieo

    Suicidal thoughts

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    I have high prolactin and am waiting on MRI results.  I'm not sure I can wait, I have suicidal thoughts and feeling paranoid and extremely anxious. I'm so scared that there won't be any help, and this is how I am. I'm almost hoping it's a tumour that can be removed so that at least there is some action to take. Did anyone else experience these feelings? 
  • SarahW.BC

    Pituitary Tumour- News to me, SO MANY QUESTIONS

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    I am a 28 year old, fit, extremely healthy female.I  found out about a month ago that I had a 7mm tumour pushing on my pituitary gland. I live in a remote area in northern BC where regular GP doctors are even hard to come by, forget specialists, I am extremely frustrated and heartbroken after unsuccesfully trying to get pregnant for over 2 years. Finally I received an answer as to why; a tumour....
  • deleted_user

    Starting meds again.. Need advice

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    After I was first diagnosed with my prolactinoma I took Cabergoline for about a year. I was able to get off meds completely for about 8 months. I just found out my tumor is growing again, so now I have to take medication again. I was miserable on the Cabergoline. It made me sick (nausea, vomiting, headaches, etc), and I experienced horrible swelling problems (face, wrists, lower legs, and feet)....
  • cindyL

    Continued..

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    now i always consumed bromocriotine twice per day and cycloproginova (menstruation pills). Sometimes i can't control my headache after i consumed bromocriptine. 
  • deleted_user

    Bromo: Memory & Spacy?

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    I have a 8mm tumor...For the last monthe I've been taking 2.5 mg of bromocriptine twice a day.I do expect some adujustments since this is such a strong brain altering mediction.Benefits i've seen is a curb in my appetititie, energy changes, some days a lot, others none. things that concern me are...I'm having memory blanks, headaches. I feel like i'm walking in a clear plastic bubble. My head...
  • deleted_user

    MUST READ! If u have elevated prolactin

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    Ok first of all if you are dealing with hyperprolactinemia my heart goes out to you because I have been struggling with this for almost 10 years. I have seen so many doctors I have lost count including doctors in big university hospitals. When I was first diagnosed I had a prolactin level of 60 (normal being less than 28). Fast forward almost 8 years later and my levels have risen to 128. About a...
  • chesterandspotty

    Post-surgery update

    Hello all,I just had surgery on tuesday to remove my 10.5mm prolactinoma and it went remarkably well! I came home Thursday afternoon. 36 hours in ICU and the last bit in a regular hospital room. I'm in NC and was lucky to find two incredible neurosurgeons doing the procedure, which i think took about 2.5 hours. FYI, if you're considering the surgery, you want an "expert" surgeon, meaning he/she...
  • ilovemy2boys

    high prolactin

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    Hi everyone I'm new here and just wanted to share my story to see of anyone can help me to understand. I'm 27 us old.I had my first ever smear test 2 weeks ago and the nurse mentioned that I bled during it. As I got home I started with period like pains and lower back ache (which I still have now and then?) A few days later my breast started to hurt (bruised like feeling) So i went to my Dr last...