Prolactinoma Support Group
A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. Prolactin stimulates the breast to produce milk during pregnancy. After delivery of the baby, a mother's...
I was diagnosed with a ~2 cm macro prolactinoma last year, and have been taking cabergoline since August. We've increased dosage to 0.5 mg per day, and finally prolactin levels are in normal range and tumor has shrunk to about 50%.
My question is around testosterone returning to normal levels on it's own. Can the pituitary heal enough that levels will return or am I just getting the run around from the docs? (long story of horrible care) Total T hasn't broken 300 ng/dl since I began testing which was at 118 when started and most recent bloodwork had it 285. Current doctor is slightly more comfortable discussing it as something "to watch" but refuses to say anything more.
I have had low T symptoms for about 15 years already, but never associated them with low T choosing to beat the medical professionals to the punch and just labeling it as my being fat (which has quickly disipated since beginning cab...~30lbs lost). I'm anxious to just feel normal again and so curious if anyone has any insight? TIA!
I am glad you regimine of Cabergoline is working for you, that is really good keep it up!!!
Sadly I have had very bad side effects to the medicines and have had to go a different direction.
So we Tried TRT and it did help in some ways. I was averging sub 100 T and with a low dose of Injectable T 50mg every 2 weeks I was able to atain 297. I am no expert but have read a lot about TRT.
In the beginning It made me lazy and tired as my body got back use to having usable T. It helped my Labido considerably after about 4 weeks. At about 6 weeks It did make my irritability worse for a time as the levels normalized. I did have an issue with my E2 (Estrogen) so if you get some TRT watch and have it tested if you see your self getting more irritable. Remember there is no quick fix. But going slow and taking time to adjust has helped me.
I am hopeful that as time go's on I will become more accustomed to the hormonal changes and be able to get back to a more happy and productive place.