Neurocardiogenic Syncope Community Group
For anyone suffering with an autonomic dysfunction like NCS, POTS, or other vasovagal syncope and would like to connect to others and discuss, share, and care about one another as we learn to cope with the many challenges of this disease. And remember that DailyStrength is designed to be completely anonymous. The only information that is required is for you to choose a...
Hi all I'm 37 and have been suffering with Vasovagal attacks since I was 16. The first episodes were maybe once or twice a year and hence I ignored them and didn' let it affect my life. However 3 years ago I had my first ever episode of Pericarditis which caused my Vasovagal episodes to increase. I was hospitalised and outpatient tests were carried out like 7 day ECG but everything was negative. Recently (in september) I had my second episode of Pericarditis this again mounted to me having Vasovagal attacks everyday sometimes 3 times a day. My Cardiac has put me on the list for a loop detector to be fitted as my tilt table test was negative. Vasovagal has taken over my life from working full time and being 'normal' I am now unemployed and suffer from severe Anxiety & it' nice to find a group of people who can understand my worries. My pericarditis has cleared up however my episodes of Vasovagal have not reduced. This is my biggest worry. I am scared to drive or go out of the house alone in fear of having an episode. The GP says I just have to wait till I can have my loop detector fitted but that won' get me a job nor my health back to normal. I was wondering is their any financial support available out their as I am now really struggling financiallh. I have a wife and 2 kids and need to get my self sorted. I've been referred to Mind Matter classes and I have my first session on the 14th.
Sorry for just now responding. I'm working on my PhD and it sometimes hogs my life.
I know there are several on this board who could probably answer your question better than me. But I also had vasovagal symptoms since I was 12, but they were rare and I thought it was normal, so I also ignored them. Until I started having them often, I thought nothing of it (people are always surprised by this). But I was also experiencing chronic pain and saw a rheumatologist just two weeks later after my NCS diagnosis. It took another year and a half to get a fibromyalgia diagnosis (I switched doctors).. Fortunately, medication helped me and now I only experience dizzyness and lightheadedness but I'm very careful and try not to push myself when I feel a faint coming on. Some of us aren't able to do that.
Is the loop detector to discover if you have an arrythmia?
Fortunately, I don't faint while sitting although I have gotten dizzy. Some do have a lot of trouble fainting while sitting. We all experience NCS/POTS a little differently, but understand the toll it takes on us.
Hope you get to feeling better soon.