It seems like it never fails.
I get better/ I get worse.
The chemo did work I have not had steroids for about one yr.
But.....
The last three months I have been slowly getting worse.
Vision-- it is getting very hard to read. The nuero ophthalmologist referred me to CNIB (Canadian National Institute for the Blind) they also work with people of low vision like me.
I can see my environment well it is in mostly close up or details.
Like I can see the person standing 20 feet from me they just do not have a face.
And everything is darker it is like waring sunglasses all of the time. I am told that it will just get worse we just do not know how fast.
I am having to be fed again. I start the meal myself and when I can not do anymore I get help. At first it was once every two weeks I would need help with a meal now it it 4-6 /week.

Now I am losing muscle tone in my right thigh and the numbness around my chest is back (ms hug) when it is there I can not take a deep breath.
my groin is numb.
My bowels are not working as well as they should.
I am getting more numbness and weakness in my arms.
From the symptoms I feel now is just like it was two yrs ago. I went like this to being paralyzed from chest down in four months.
I try to look on the positive side and say it might not be as fast this time.

My doc here at the hospital is on vaca so he is not here this week. There is another doc covering I hope he listens to me and give me a course of high dose steroids.
Here's hoping.

The only thing this can be is I am in another ms attack. So I am going to try to nip it in the bud. and get back on the steroids

B/c of the numbness /weakness in my hands & arms it is hard to type. So I am going to try different things to help me.

I am still doing the Sexual Assault Crisis line. I do about 3-6 shifts/week.
It helps me to help others.

I am also involved with the patient counsel we try to get things done that help patients. In the past yr we have done.
- got a front loading washing machine so patients in wheel chairs can do there own laundry promoting independence
- last month we brought up
The OT for our program had two assistants one retired and the other is out in long term sick leave. so we were without our programs that help us with moving and thinking. We brought this up in counsel and the management listened. So now they have hired a new assistant so we are getting our programs back.
- I have also demanded better privacy.
We are getting it.

I also go to other programs during the week.
I try to keep busy & productive.

Soon when spring gets here I will go home again for visits Take my dog for walks & have BBQ's with the Hubby.

Thanks for letting me Vent.