Sept will be 13 yrs. 2010 progressed into secondary progressive started Amprya 3 months ago to soon to tell.

DX 1998--16 years
Tecfidera--6 months
Love not selfinjecting

Finally diagnosed March 31, 2011 but have had MS for 40 years!

Took Copaxone injections for 2 1/2 years then stopped and now only follow the Wahls' diet. The shots didn't make me feel any different. At least with the diet, my overall health is better.

Gentle hugs, Linda

15 years. Tecfidera - working great.. I don't think I could ever do shots again.

dx 2005, first signs of ms 2000, started betaferonm, bad reactions tried avonex & got worse went on trial of gilenya & as soon as approved wen on it here too. Does seem to be stopping/slowing lesions but not symptoms which are getting worse at a very fast rate & now dx as secondary progressive. Don't know what's next.

I was dx in 2001 after about 15 years of vague symptoms. Started on Avonex..... UGH! Did not stay with that for longer than 3 months. Went to Copaxone which was ok for many years but then I started having weird reactions... fever and chills and shivering. The Neuro recently took me off the shots and did NOT recommend anything else. I am 63 years old and doing fairly well, although lots of pain, dizziness etc. I'm pretty much on my own now. Had an uncle who died from the effects of his MS last year at 77 years old. He never took any meds at all... for anything... ever. Tough old man.

Dx - 9 years ago

Tecfidera - 6 months - I like it. Just hoping it's working.

Had difficulties on copaxone, interferons, and gileniya.

Diagnosed almost 30yrs ago, never took steroids.
Use LDN in a liquid method, some studies show that it stops progression. Online check ldninfo.org.

DX 2000 - 14 years
Gilyneia - 7 months
Love not having to takie injections anymore, was on copaxone for 12 years.

28 YEARS

4 years for me have MS. Been on Copaxone Dr wats me to change me 2 Gilenya. not sure decide on Friday.

after roughly 6 years, likely longer, of being made to feel like a hypochondriac, was diagnosed by primary care as MS being likely the reason for my ongoing list of symptoms.
that was my 45th birthday present.

10 yrs diagnosed. first 2 used copaxone until site reaction gave me
reason to "forget" to do shot. put on Avonex and, so far, the most awful part of my MS adventure began. once a week i had harsh flu
symptoms that were so intense i wished for normal flu! it would last days after my Saturday shot. my body hurt everywhere, alternating fever and chills were awful. the list of "possible" side effects was written for me cuz i had em all..

why did i keep using that vile drug? because my husband was afraid if i stopped the MS would progress.. avonex side effects dictated my life for almost 5 years.

almost used rebiff but did a little self advocate and researched it.. its a combination of copaxone and avonex that i had ZERO desire to experience so i finally took a little control and said thank you very much but no..

horrid health issues in 2011 that had nothing to do with MS gave me a surprise gift. a neurologist i told why i hate avonex asked why are you still using it? its tested to 3 yrs use and your past that. it was wonderful to no longer use avonex!

working nutrition and exercise plan along with seeing my awesome chiropractor on a regular basis now.

so far doing
ohh kay
^_^

I'm one of the 'lucky ones' in 2 ways.
1. I was diagnosed after only 6 months of numbness, tingling, and some changes in my reflexes. I was 19 & 1/2 years old and a sophomore in college.

2. I only had some numbness and minor losses of balance for the next 30 years. I had minor 'flare-ups' 2-3 times a year -- but only 2-3 of them were bad enough to miss more than 1 week of work.
This way before these new drugs.
In 2000 I was started on Avonex - 1 intramuscular injection a week which my husband gave me. I was on this for 10 years - until I was pronounced Secondary Progressive. I am now taking meds to control my spasms PLUS an antidepressant.

So -- long story short -- Diagnosed at 19 --- only mild symptoms and fatigue -- lived an active life raising 5 kids and working part time. Slowly increasing fatigue and numbness and decreasing function in my right (dominant) hand caused me to retire on disability 10 years ago. SO I AM ONE OF THE BLESSED ONES TO STILL BE MODERATELY ACTIVE 43 & 1/2 YEARS AFTER DIAGNOSIS.

4 years on Copaxone Dr wants to change me to Gilenya.

So, what did you decide GeminiAmy?

I was dx'd 11 years ago but had symptoms prior to the dx. Decided against all MS treatments in 2008/9 - don't believe in all that and what they do to our bodies.

My walking/gait issues have gotten a bit worse of the years but I've just started the Wahls Protocol in May and made exercise more of a habit so I'm hopeful that between Dr. Wahls' advice and what I'm learning about exercise and nutrition, I'll undo what the western diet and medicine has done to me.