I get that with my knees almost every day and can only stand/move for about 10-15 mins at a time before needing to rest and put my feet up. Dr's thought possible MS but now it looks like Sjogren's and possible SLE since I tested positive. Hope you figure out what is going on :)

Thanks for the response.

My legs aren't doing so great either. (I use a mobility scooter in the street & wall surf mostly in the apartment.) I can't go more than a few feet w/out resting.

Interesting.

Oh my gosh, that happens to me frequently. Every time I work in the garden for too long (scootching around with a lawn chair), I barely make it back into the house and then collapse inside the door. It's so gradual getting into the door that I actually hold on to something and ease myself down to the ground and just sit there for a few minutes until I've regained enough strength to push up off the floor.

That was my very first symptom 16 years ago or so. I was cutting the grass and my legs just started to cave beneath me. I had to wait until I gathered strength and use the lawnmower as an anchor (it was off by then), and the use it as a walker to get to the house. That was the first time I wall-walked although back then, I didn't know that's what we called it.

It's challenging to remember that things have to be broken down into smaller sections. I still want to prepare a family meal all at once. It's difficult to remember to start by really planning small things at a time. Still working on that.

Yesterday I forced myself to use a shopping cart rather than a scooter in Target. I tried to work as fast as I could and made it through until all of a sudden a bathroom break was urgent. What a relief that I did manage to get some exercise though. I keep thinking that it's the only way to keep some mobility, forcing myself to do things.

It's like vacuuming . . . I start out for two minutes and then have to sit in different things around here and hoist the vacuum over. Whatever works to keep moving until I just have to have a real break. :)

If I walk or stand too long, then I also do the gradual lowering to a seated position, but sometimes it happens suddenly. When that happens, I fall. People who know me always assume it's dizziness (and that happens at other times), but my legs just give out on me. It's frustrating.

Yes. For me, the key was figuring out WHY I was falling. It usually happens when I have been on my feet for too long, or if I haven't had enough sleep. It can also happen when I get up from sitting and don't realize that my foot has fallen asleep. So, I stomp my foot before getting up to make sure it's awake.
Lorrie, in the kitchen (or anywhere else, for that matter), break the task down into manageable tasks. Cut the veggies in the morning and refrigerate until ready to use.

I also bought a Roomba for vacuuming.
1. It saves my energy.
2. It gets all the way under the bed or sofa where a vacuum won't reach.
3. It forces me to clean up a little (gets things off the floor).
4, It's fun! Brightens my mood because the room is picked up and looks better, the room is clean, and I listen to it purr while I use the computer or do something else. Makes me smile.