Hi I was already a member because I have Narcolepsy and Cataplexy, as well as prolactinoma and osteosperosis. I take provogil modafinil and have done since 1991. January 2014 I had a heart attack. I did not have to have a stent as my heart did not have bunged up arteries. As I was only 45 they did not know why I had had a heart attack. They found I had a small hole so decided that it must have been a clot that had dispersed on the lower branches. They sent me away with the usual pills, clopidergrel, aspirin, bisoprol, iron tablets and a statin, forget the name of it now. I kept complaining that my legs kept giving out at the knees. I felt as if I was in a fog, and it seemed to be the pills, so after a lot of backwards and forwards to the doctors I stopped taking them as I just felt terrible. I am not overweight I'm 11st 9lb.

I live alone and was dragging myself about from having heart attack and things started happening like tingling in my hands and they were always freezing as well as my feet. I was completely exhausted and could still walk but daren't go far as my legs wouldn't do what I wanted. Finally in 2015 after repeat trips to the heart specialist and repeat tests that I had already had done in the hospital he said my heart was fine and that I should see a neurologist.

I then went to stay with my elderly parents as I fell over in the bath not knowing what was wrong with me and still struggling to look after myself. Over a year later I had an MRI scan and saw the neurologist who wanted me to have a lumber puncture too.

In March I received a letter to say the results were that I had MS and to see the Neurologist to discuss. The letter went to my home address so I luckily picked it up the day before I had to see the Neurologist. On arriving he said was I still managing to walk, which I was just about with a stick. I hadn't really had time to find out what MS was. I was totally clueless. He asked how I felt and if I was having problems with my waterworks. I said I felt awful and that my hair was falling out. He said yes you will feel awful as you have got MS you need to tell the DVLA. See your doctor about hair loss as it is not MS or the pills you take for narcolepsy. You could have primary 1 or primary 2, I don't know. I'd never heard of either so I had no clue what he was talking about. I asked if there was any medication I could take to make me feel better he replied No, it just grumbles on at your age. Do you want to see a nurse? I said yes. He finished with see you in 6 months then. The whole visit did not last 5 minutes. I was as clueless as I came out as I was going in. Other than the fact I have some sort of MS and I have to tell DVLA.

I have since had an appointment come through to see a nurse 13th April. I thought I would ask for advice on here as I honestly have no idea what the heck is going on or what I need to be asking this nurse. I get lower rate in care and Motability with the DLA. I don't know if I will get any help to go home alone or if I will have to sell my house? Sorry if this all sounds confusing but that is what I am at the moment and not sure what will happen next? Any advise will be great.