Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Allot of you know my story (well I complain enough anyway)
I was doing so poorly 1.5 yrs ago.
paralyzed from chest down. and so on.
I did the chemo treatment. I was told I could take three doses. After that it gets risky. They told me I risk getting heart failure. So I stayed at the three doses. Things have been going good. I went one yr without steroids & I can still move.
But things are changing. The last 3-5 months there have been things I have trouble with. I started to need help with feedings just a few times a week. I need help with more of my personal care. My bowel started not to work right then my ribs went numb and I could not move them. So I talked to my doc about taking a course of steroids. They helped but thing are all ready going down hill again. I just finished the steroids they should still be working.
I am getting more and more numb spots and more and more weakness.
I feel like I am complaining it just really sucks.
it is hard to loose the ability. To slowly sink into non-movement.
sometimes it makes me feel like I want to screammmmmm!!!!!!!
thanks guys it feels better to get it out
I was doing so poorly 1.5 yrs ago.
paralyzed from chest down. and so on.
I did the chemo treatment. I was told I could take three doses. After that it gets risky. They told me I risk getting heart failure. So I stayed at the three doses. Things have been going good. I went one yr without steroids & I can still move.
But things are changing. The last 3-5 months there have been things I have trouble with. I started to need help with feedings just a few times a week. I need help with more of my personal care. My bowel started not to work right then my ribs went numb and I could not move them. So I talked to my doc about taking a course of steroids. They helped but thing are all ready going down hill again. I just finished the steroids they should still be working.
I am getting more and more numb spots and more and more weakness.
I feel like I am complaining it just really sucks.
it is hard to loose the ability. To slowly sink into non-movement.
sometimes it makes me feel like I want to screammmmmm!!!!!!!
thanks guys it feels better to get it out
-
Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
-
I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Have you tried seeing a naturopath? I'm always researching, bound and determined to find something that helps.
I'm glad you're venting. We all need to decompress now and then to keep from exploding. :)
We are all behind you. We are all with you. We all care about you.
Gentle hugs and joined at the heart, Linda