Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
LBunnies
I am curious to know what everyone has realized where actually the first symptoms of MS. We get diagnosed years later and then look back and say, I knew something was wrong.
For me in my 20's out of the blue I had panic attacks, intense fear and paralyses that led me to the ER, they did a CT scan and then said it was just panic. But I felt sick 24/7. It lasted 8 months and then returned every 2 years for 6 months at a time until 2009, where it changed to horrible pain in back/hips/legs and I couldnt walk.
So looking back what do you think were your first symptoms of MS?
For me in my 20's out of the blue I had panic attacks, intense fear and paralyses that led me to the ER, they did a CT scan and then said it was just panic. But I felt sick 24/7. It lasted 8 months and then returned every 2 years for 6 months at a time until 2009, where it changed to horrible pain in back/hips/legs and I couldnt walk.
So looking back what do you think were your first symptoms of MS?
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amy
It was sure scary when symptoms started occurring, wasn't it? Did you walking improve over the years?
found out later-
A year after that my righ hand and arm got numb and I got the same dx.
Then both my legs and arms gor numb and I could hardly walk and had almost no use of my right hand, thats when I went to a Neuro who did all the tests (spinal tap, mri, etc) and I got my MS dx.
It took almost eight years to find out what was wrong. I was on avonex for some time and now I am taking Gilenya.
The numbness in my hands and arms never went away, but fortunately I can walk and still have a job.
I just notice between my front two teeth the filling is gone and it has turned black. Ugh..... no dental insurance to fix that, so i pray it doesnt start hurting too!
When I was about 14, SOMEtimes, my legs got weak for me, so I just couldn't help out at home to to much (like I couldn't carry the big grocery bags so well, I couldn't carry in the wood logs for the fireplace aLOTTA the time; simple stuff my brother had no issue with doing always.) The Dr.s just told my mother I was "too selfish" to want to help out "Her reflexes are just fine/ her legs work when she wants them to! Also, she just keeps the shower water toooo hot so she ends up dizzy afterwards; so SHE can be squeaky clean and waste every drop of hot water in the tank for herself! She REALLY IS just being SELFISH! She needs to be taught how to act well"
Then In high school when I'd fall asleep in classes; it was again because I were a selfish person. Because Miss Gwen musta stayed up all hours of the night just watching TV instead of getting any rest! One nurse said "Oh all teenagers are over tired; its not a thing to worry about
When I had problems in school again at 18 I was FINNALLY taken serious with my health problems.
My vision was doubled for seemingly no reason, I was not drunk, or having sinusitis, the ophthalmologist told everyone that something REALLY seems to be wrong with Gwendolyn that is NOT her fault! Is there a history of Multiple Sclerosis anywhere in the family?... A week later I had my first MRI that showed 26-32 of our happy MS spots.
Do not apologize for long posts, I want to hear everything you can remember. It has been very informative to say the least.
Keep them coming and Thank you so much!