Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

0 Online
  • Connected Research, a family owned and operated market research firm, is currently doing a study for a client that would like to discuss emerging treatments/medications with SLE/Lupus patients.  These one-hour webcam interviews will take place January 11th-20th, and the honoraria for participation is $125.  We are primarily seeking respondents ages 18-56 that have been affected by SLE/Lupus. ...
  • slyster

    Ultimate Christmas Gift List for Lupus Sufferers

    2
    Finding excellent gifts for friends and family can be tricky, but it can be even trickier when people are sick and not very into the holiday spirit.Here are some good ones to consider in the coming weeks:1) A gift certificate for a spa treatment.  Not everyone loves massages, but there is usually at least one treatment on offer that would make your favorite lupite feel good.2) Dinner out....
  • greentea

    Lupus & RA?

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    Anyone? Newly diagnosed and not on meds yet. Any suggestions, comments on having both of these?
  • panda87

    My story

    2
    Hello Everyone! I have been struggling with Lupus since I was about 11 or 12 years old, but it took many doctors, some good and some awful, almost 20 years to finally diagnose me. I am now 29. I have had the rashes and body pain since 11. The rashes went away a couple years later and only returned again recently, but the pain just kept getting more and more severe. To make matters worse, I also...
  • deleted_user

    Vaginal Ulcers

    Yeah, this topic might make us blush, but it's part of our reality! Has anybody had experience with these? I have a few times, during flares. They seem to be just like the mouth ulcers. So, I went to the doctor (before I knew I had lupus) and they said, "Any sores in the vaginal area are herpes." That seemed like an unfair statement. They did a blood test that showed that I have the type of...
  • leelee

    Diagnosis?

    2
    I've been going to doctors every since I can remember. At the age of 5 or 6 I started having real bad headaches that it hurt to move. I was diagnosed with anemia around 6, hypertension at the age of 17 which I've been medicated since. I started having severe chest pain that I thought was a heart attack and was hospitalized twice but a heart attack, panic and anxiety attacks was ruled out by...
  • mysensitiveheart

    Frustrated !

    7
    It is nearly impossible to get an appointment with a local rhuem . so i am just in worry mode . I have so many painful disorders that my G.P. suspects that the intensity is being caused by the auto-immune issues . He had run a panel for specifically auto-immune diseases and all of my levels were raised . He , of course is not trained to treat me for this and wont . My biggest concern is Lupus ....
  • sksen

    New to group, lots of questions!

    2
    Hello. I was diagnosed with Lupus after the birth of my second child at 25. Ironically, at the time, I had excellent insurance but other than extreme fatigue, anemia, and MVP, it wasn't really bothering me so I just kind of ignored it. For a long time I thought they might have been wrong, so many people with Lupus were going through so many terrible things and I was, for the most part, okay....
  • mmcmommyof5

    Eye Pain

    2
    I've recently been diagnosed with Lupus. Mostly it's just been severe joint pain and inflammation. For the past month or so though my eyes have been painful to the touch (like when I rub my lids). One eye was partially red for a few days but that's all for redness. Could this be from the Lupus?
  • deleted_user

    swelling on neck

    5
    for the past week i have been getting swelling on the left side of my neck.as well as this pain in my groin and side(so bad i can't touch it)all on the same side.doctor gave me antobiotics no't helping.Can anyone help please ,thank u
  • fallingleaves

    Sinus Inflamation

    9
    Hello allI am miserable  with daily sinus swelling and pain causing headaches.My dr has me on antibiotics and i'm taking over the counter meds ,also netti pot rinses.I am not getting better.the inflamation is so bad and has been bad for 2 months now.i have no mucus in my nose.Just swelling and post nasal drip.Is anyone else here having their lupus attack their sinuses?
  • jenflower

    Do any of you have sjogren's syndrome

    8
    I am beginning to wonder if I have Sjogren's syndrome. I have been always sensitive to light but over the last 2 months, I have had pain in my eyes. Also, my eyes are watering a lot over the last year. I have always made excuses for it. but over the last 2 weeks, i have been having actual pain in my eyes. It doesn't really go away with closing them. Which is why I went to see the eye doctor...
  • Syeera

    This CAN'T be all in my head!

    I'm not even sure I belong int his group anymore since so far, no one can tell me what's wrong with me. I just got the rest of my blood test results back. Here are all of them:RF:  
  • lazylegs

    Blood Tests

    6
    I was diagnosed 11 years ago but I know now that I have had lupus since my teens.  I have constant pain and fatigue but my doctor tells me that my lupus is not active - she is reading my blood test results.  I have read somewhere that disease activity cannot be indicated by those tests.  Does anyone know anything about that?  I live in a remote area of Canada and we don't have a choice in...
  • mysensitiveheart

    terrified and hopeless

    3
    You can read my other post om this board for some backgound about me . Can someone telll me how they were 1st diagnosed ?. I have elevated ANS (?) levels found out through a specific blood screening . Would anyone be generous and kind enough to share your levels with me ? I zm terified since I have so many other medical issues that are draining every bit of my soul , am in constant chronic pain...