Lupus Support Group

Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.

0 Online
  • Hopefull1

    Not Knowing

    1
    Hello, for the last couple of months I've been having a lot of pain and aches( leg, knee, hip, back arms, neck, and wrist at times) fatigue, memory issues and brain fog ie. I can never think of the word that I'm trying to say, I also have headaches some days. OTC medicine didn't  work and the anti-Inflammatory that my PCP prescribed didnt work. I was referred to a rheumatologist who ran test and...
  • tiff227

    No symptoms but positive tests?

    0
    hi... I’m  tiffani and I’m 17 years old and I was diagnosed around a year ago with lupus based on test results... all the test came back positive or strong positive. But I have no symptoms besides my test results. I was just wondering if anyone else was diagnosed like this and if you got symptoms eventually and when? My rheumatologist wants me to take plaqunil but i really don’t want to...
  • Syeera

    No Diagnosis yet but new symptom

    2
    I have been struggling with numerous Lupus-like symptoms for 2 1/2 years: joint pain, muscle pain, brain fog, dry mouth eyes & nose, mouth & nose sores, hair loss, dry skin, sensitive to light, fatigue, shortness of breath and severe reaction to bug bites just to name a few. I had various tests done about a year ago at the Rheumy, all negative. He said that since my ANA was normal, I couldn’t...
  • deleted_user

    Lupus with RA?? or just Lupus

    5
    I have just been told that I have Lupus but I may also have RA? My joint/back hurts of course, but my knuckle are huge...the more I use my hands the more they hurt, turn red, get hot and rashy and swell. I have always had TINY fingers and hands but I look like I almost have "man hands" as my boys would say. Is it possible that lupus has done this or sound more like RA? BTW...I have my Rheumatoid...
  • rcykb1

    PLaquenil Toxicity

    1
    Hi,Has anyone developed plaquenil toxicity? My doctor had me go for a baseline Multifocal ERG after being on Plaquenil for five years to rule out plaquenil toxicity. It came back inconclusive partially complicated due to my difficulty with not being able to not blink during the testing. I am wondering if anyone has dealt with plaquenil toxcity and their doctors put them on instead of plaquenil....
  • deleted_user

    Silver Shield

    Hey everyone I have a question has anyone heard of Silver Shield by natures sunshine Its a natural antibiotic. Does anyone have an opinion on this or heard anything about this?
  • Dee85

    Looking to meet other people with lupus for friend

    6
    Hi I am a 32 year old female with SLE. I am looking for online friends who also have lupus like me. I think it would help to talk to other people who suffer from the same disease like me, as this helps you to feel like you are not alone and offers a outlet for support. If anyone is interested please feel free to send me a message. Thank you
  • Sunflower13

    Issues with Plaquenil

    2
    Hi everyone am a newbie to this forum . Was diagnosed 8 years ago with cutaneous lupus and sjogrens. My symtoms were malar rash, joint pain and swelling especially of the  hands , dry eyes and fatigue . For the past 8 years i have been taking Plaquenil . At first i was on 400mg a day then the last few years i have been taking 200mg a day . Plaquenil has been very good to me . All of my symtoms...
  • deleted_user

    Work and Lupus

    I was wondering how many people with lupus are able to work 40 hours per week and how many sick days do you need to take generally speaking. I had to quit a job that was pretty physical 3 and a half years ago due to the neuropathy and arthritis in my wrists. I have gone back to school and am almost done, but am scarred the stress and being up and going 40 hours per week will trigger another bad...
  • deleted_user

    Not Lupus...

    I saw my Rheumy today. My Lupus test came back NEGATIVE!! He said that all of my symptoms are from Fibromyalgia that he diagnosed me with over a month ago. He is sending me to a Pain Management Specialist. I hope I can get some kind of relief. Thank you all for your support and suggestions. Hang in there!
  • deleted_user

    On Lupus Levels

    0
    So I think I have had Lupus now for a while. I had a serious time of "chronic hives disease" and then "Epstein Bar." Given the current state of things, I think I have been misdiagnoses for years.Is it possible to have full blown symptoms when the "levels" are moderate to low? My Dr acted like this was no big deal. I read some on it and discovered I have lots of the symptoms. I still have scaly...
  • bsmith4421

    Lupus and lupus anticoagulant

    3
    Hello,I was recently informed by my hematologist that I may have lupus anticoagulant which was found after I suffered from a PE and dvt. He referred me to a rheumatologist to rule out lupus but my question is, is it possible to have LA without lupus? And if I do have lupus, being 21 years old, I enjoy outdoor activites, concerts, and going to the beach. I don't ever recall any type of issue after...
  • deleted_user

    Is this Lupus?

    3
    I have been having severe stomach pain when I'm hungry and worse if I eat. I get sharp pains in my upper right hand side under my rib cage and also in my lower back just above my buttocks. Then yesterday I began to lose my bladder function. You know urinating periodically and not being able to control it at all. I woke up this morning soaked in urine even though I had a pad on. This is just...
  • deleted_user

    Lupus

    9
    Hi Guys, just wanted to check in. I am really sad. It seems that my life is consumed by my lupus and work. I am really mistreated at work, I call my boss evilina. My boss knows that I have lupus and there are moments when I have lupus fog in such an ugly way that I can't remember my name. Today I was typing up a memo and I totally forgot how to spell! I could not believe it, simple 1st grade...
  • deleted_user

    Lupus

    Hi Everyone, I am new to this group, diagnosed with lupus a week back. I am 31 and had a miscarriage at 8th week last december. My Gynec's report showed that I have autoanitbody during the first 2 weeks of pregnancy and my hemoglobin level was so low at 8.4, but she didn't ask me to take any medicine for the autoanitbody part and I also thought it is perfectly fine. after i lost the baby, with in...